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Karen flor Female sao paulo,sp Brazil: Favorite

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Adolescence (age 7-12)

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HELP with schools and IEP programs

Started this discussion. Last reply by Mandy Jun 2, 2011. 5 Replies 0 Favorites

Hi!!! and HELP!!!! My family is moving back to the States in Jan. We've lived in Brazil for the last 8 years.....While we're excited to be going home, I'm feeling insecure about the kids school…Continue

scooters vs electric wheelchair????

Started this discussion. Last reply by Sara Savalli Sep 13, 2010. 11 Replies 0 Favorites

Hi all!! First I want to say that it is such a blessing to have a site such as this one to exchange info and reach out to others that really GET IT!!! Now my second part, we took Lucas to Dr. Wong…Continue

holistic help for DMD in India

Started Apr 12, 2010 0 Replies 0 Favorites

I received an e-mail about a DR Ramesh Bhardwaj who apparently a leader in holistic medicine{ if you can believe google} He's now treating MD and I wondered if anyone's heard anything about him.It's…Continue

RISK OF DIABETES IN DMD BOYS?????

Started this discussion. Last reply by Karen flor Apr 11, 2010. 6 Replies 0 Favorites

If anyone has any info on this, I'd love to know.. My son, Lucas, 10 years old was diagnosed with DMD 2 years ago. He recently went on a school field trip and returned home with 3 empty water bottles…Continue

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Name(s) of child(ren)/individual(s) with Duchenne:: Lucas

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: sao pauo sp

Karen flor's Blog

FACEBOOKERS

Posted on January 21, 2011 at 7:40pm 0 Comments 0 Favorites

Calling all facebookers....Apparently a disaster relief company called GOT MOLD? is donating $1 toward DMD research for every LIKE they receive untill Jan 31st....Just go to facebook..look up GOT MOLD and click on their LIKE....every click you and your friends do brings us one step closer to saving our boys!!!!!!!!!!!!!!

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At 7:39am on December 7, 2016, Benson Christopher said…: Hola, cielo
Mi nombre es Christopher Benson, nací el 15 de abril de 1975, mi padre era originario de Estados Unidos de América, y creció en Luisiana. ¿Soy el único hijo e hijo de mi familia, estoy aquí para encontrar una mujer en mi esperanza de vida es usted...? por favor escribirme correo (christopher7benson@hotmail.com) creo que me gustas.
Gracias
Christopher Benson.

At 11:22am on April 10, 2011, Brenna said…: Karen-

Thanks for replying, it's wonderful to know another family that is traveling to Columbus! Our appointment was last Mon. It went great! First Sawyer did the PT evaluation. This took alittle over one hour. Parents aren't able to go with as this is being done, it was not scary to Sawyer as he goes to PT and OT 2 times a week for 2 hours each time and is very use to the equipment that was used. After we were able to talk to Dr. Mendel. He still wasn't able to tell us too much more than we were already were told. 33 boys are being screened and they are taking 12-16 participants. The middle of May they will call to let us know if we were excepted. They are 95% sure that there will be finacial assistance. June 1st is the projected start date. So glad to connect with you! -Brenna