Welcome Karen. Sorry that you have to be here, but you will find that this community is made up of some wonderful families who are here to support and help in many different ways. I just glanced at your profile and saw that you live in West Seneca. My family and I now live in Chicago, but I grew up there and my parents still live in WS off of Main Street. If you ever would like to talk to some other grandparents I get their information to you. Our son Ben was diagnosed a year ago and is now 5 yrs old. We visit my parents a couple times a year and our next trip is planned for August. Take care!