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Karen Jones Female Granville, Ohio United States: Favorite

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Started this discussion. Last reply by Susan Rathfelder Jul 1, 2011. 1 Reply 0 Favorites

Started this discussion. Last reply by Cheri Gunvalson Jan 9, 2011. 16 Replies 0 Favorites

Started Nov 1, 2010 0 Replies 0 Favorites

About me:: Stay at home mom. Mother of two boys. Oldest son is sixteen and my youngest son is 13. ( younger son has DMD). They both are the apple of my eyes.

About my family:: We are a very close family and love spending time together. We travel, quad, swim and try to enjoy every moment.

At 2:16pm on August 16, 2010, Richard Cloud said…: Hi Karen,

LAM-111 is a structural protien that restores muscle adhesion in boys with DMD. You can find out more on our website, www.prothelia.com. With funding and regulatory support, we are focusing on clinical trials in 2-3 years. I wish it was sooner for both our children.

At 10:06am on February 24, 2010, Missy Shutts said…: Hi Karen -

We will certainly miss you in Cincinnati but look forward to you joining us next year! Just let us know if there is anything we can do to help you with your event this summer.

Have a great day!
Missy

At 4:44pm on February 19, 2010, jenn said…: hi karen, austin and max are at the adaptive ski program at the double h ranch in lake luzerne ny in those pics. we went for the first time last year and loved it. we will be there again in a few weeks. i didn't ski then but my husband did...it is the same camp they go to for disabled children every summer it is the best place ever! you can also do adaptive skiing at almost every big mountain, here in vermont at least.

At 10:44am on January 28, 2010, Missy Shutts said…: Hi Karen -
We have just finished the Flying Pig page and are ready for you all to start registering. www.runforoursons.org
Please let me know if you have any questions!
Best,
Missy

At 1:33pm on January 19, 2010, Missy Shutts said…: Hi Karen -

We will definitely have a team at the Flying Pig this year! I am finalizing the registration page and will have it up and running soon - hopefully by the end of the week! I will email you all when it is ready.

Thanks :)
Missy

At 11:32pm on November 19, 2009, Janine said…: Hey is your e-mail still the same. Let me know and I will write to you there.

Janine

At 6:47pm on September 4, 2009, Janine said…: Karen,

The kids started school her last Wed. Seems to be going well for Derek at the high school. Even though we started the process for his power chair in Feb. we still do not have it. Hopefully by the end of next month. So we had to change plans. He was going to go on the bus but since he didn't have his chair his scooter doesn't fit on the bus. We did buy a accessible van last month and we are able to hook the scooter in there. So Kevin takes him and picks him up every day. He seems to be doing ok. My biggest worry was lunch. I was worried he would be alone but his best friend who is a grade above ended up being in his lunch so that is ok. Did Scott go into ninth grade? Derek was hoping to get together. Are you guys going to the telethon at all? We'll (or at least me for sure) will be there from 12 to 3.

Janine

At 8:48pm on June 1, 2009, Karen Jones said…: Hey Missy,
That's great news. We are going to try and double that amount for next years race.
Our address is phelpsjones1@windstream.net. Sorry about the bouncing back? Thanks for all your help. Karen

At 4:01pm on June 1, 2009, Missy Shutts said…: So far, we have raised over $15,500!!! I sent an email to the RFOS Cincy team, but yours bounced back to me. when you have a moment, please send me your email address again.
Thanks for everything :)

At 9:33am on May 21, 2009, Missy Shutts said…: If you happen to have any pictures, please feel free to send them to me and I will add them to our site! We have had a lot of checks still trickling into the office which is great. I will send everyone a note around the end of the month with our grand total. I do know that we have made well over $12,000!!!! We just can't thank you all enough for all of your hard work!
Have a great day :)