Started this discussion. Last reply by Susan Rathfelder Jul 1, 2011. 1 Reply 0 Favorites
Started this discussion. Last reply by Cheri Gunvalson Jan 9, 2011. 16 Replies 0 Favorites
Started Nov 1, 2010 0 Replies 0 Favorites
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LAM-111 is a structural protien that restores muscle adhesion in boys with DMD. You can find out more on our website, www.prothelia.com. With funding and regulatory support, we are focusing on clinical trials in 2-3 years. I wish it was sooner for both our children.
We will certainly miss you in Cincinnati but look forward to you joining us next year! Just let us know if there is anything we can do to help you with your event this summer.
Have a great day!
Missy
We have just finished the Flying Pig page and are ready for you all to start registering. www.runforoursons.org
Please let me know if you have any questions!
Best,
Missy
We will definitely have a team at the Flying Pig this year! I am finalizing the registration page and will have it up and running soon - hopefully by the end of the week! I will email you all when it is ready.
Thanks :)
Missy
Janine
The kids started school her last Wed. Seems to be going well for Derek at the high school. Even though we started the process for his power chair in Feb. we still do not have it. Hopefully by the end of next month. So we had to change plans. He was going to go on the bus but since he didn't have his chair his scooter doesn't fit on the bus. We did buy a accessible van last month and we are able to hook the scooter in there. So Kevin takes him and picks him up every day. He seems to be doing ok. My biggest worry was lunch. I was worried he would be alone but his best friend who is a grade above ended up being in his lunch so that is ok. Did Scott go into ninth grade? Derek was hoping to get together. Are you guys going to the telethon at all? We'll (or at least me for sure) will be there from 12 to 3.
Janine
That's great news. We are going to try and double that amount for next years race.
Our address is phelpsjones1@windstream.net. Sorry about the bouncing back? Thanks for all your help. Karen
Thanks for everything :)
Have a great day :)
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