• Female
  • St. Louis, MO
  • United States
Share on Facebook
  • Featured Blog
  • Discussions
  • Events
  • Groups
  • Photos
  • Photo Albums

Karen's Friends

  • Lisa Jones

Karen's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
St. Louis, MO

Comment Wall (4 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 4:30pm on March 1, 2010, Christine McSherry said…

The JettRide ll will be coming through St. Louis early August 2010!! We would love to connect with you - please see the site, www.jettride.org

I would also like to send you a packet of information and a copy of the JettRide 2007 movie - my daughter did the ride in 07.

Let me know, we would love to connect and spread awareness about DMD...also to connect FAMILIES together across the countrry!!!!

Let me know asap,

At 11:49am on June 26, 2008, Tamara Walters said…
Canada, as in Canada ? (Maybe there is a Canada, MO!) Why Dr. Biggar in Canada ?
At 12:53pm on June 25, 2008, Tamara Walters said…
I am new to St. Louis, so I assume that's in the STL area ? Which doc do you see at MDA ? We see Pestronk, but are working with Connelly on the FDA trials for PTC124. So you have other kids ? We also have Hannah, 2 1/2 - who knew we'd be so glad she's a girl ?!?!
At 6:52pm on June 23, 2008, Tamara Walters said…
I'm is St. Louis with a six year old, Zachary. We live in Jefferson County. Where do you live ?

Need help using this community site? Visit Ning's Help Page.



© 2020   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service