I am a man with SMA who has been fighting against the SMA since I was a child with no more support that faith in God
About my family:
They were told that I had a muscular dystrophy when I was a child because this muscular condition was the only known then. They have fought side by side courageously. My mother is not longer and my siblings are advanced in years and only can provide me with company because they have no longer enough strenght to help me transfer from bed to chair.
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Hola Julio como estas yo soy Alexandra de Peru quisiera saber si tu vives en Peru yo soy de Lima y mi chikito a sido diagnosticado DMD me gustraia contactarme contigo ,estuve en la conferencia en Atlanta justamente con Leslie
y la voy apoyar con todo lo que se pueda en Peru.
Gracias y fuerza,