Julie Garcia
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Julie Garcia's Discussions

This Years House and Senate letter

Started this discussion. Last reply by Julie Garcia May 8, 2009. 11 Replies

Health Care

Started this discussion. Last reply by Julie Garcia Dec 10, 2008. 2 Replies


Julie Garcia's Page

Profile Information

About me:
I am the mother of four children. I helped to raise my step son since he was 5 years old. He is 36 years old now.

I work full time and try to help others when I can be of help.
About my family:
Marcus is my husband and we have three children together, John (1987), Sara (1989) and Nick (12/16/91).
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:

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Comment Wall (76 comments)

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At 9:51am on November 10, 2010, Suzanne Desmond said…
Hi Julie, Hope all is good with you. I just wanted to let you know that I finally spoke with Jill Castle from AZ a couple weeks ago. Jill was so helpful & she said I could call anytime. I can't thank you enought for hooking me up with her, she is awesome. Also, it's nice to know there is someone out there who understands what Francis & our family goes through regarding his Autism combined with his DMD. ~~ What was the name of that scientist you wanted me to speak with? ~~ Francis' new bedroom is finished all except for some furniture. When I get the photo done of the room I'll post it so you & everyone may see it. God Bless, Suzanne :)
At 3:30am on October 31, 2010, Jane Belland Karwoski said…
Hi Julie! Long time no hear from, right? I love all your photos, especially the one with all the feet dangling from above! :)
Julie, I've been working on developing a resource for carriers of any genetic condition or predisposition. It is still in early stages and I hope to develop it further with input from others about what they would find helpful (scroll down to my first blog post there to see what I have in mind). The blog is at http://www.mybluegenome.com and I'm at http://twitter.com/mybluegenome.
If this is of interest, I would love to have you follow me at either or both!
Big Hug,
At 9:52am on June 23, 2010, Star Bobatooon said…
Julie - I look forward to seeing you this weekend in Denver. I will be brining my son this year. He is 14. Give me a call 703-593-9106
At 2:17am on June 11, 2010, Marisol said…
YEs, I did get onto the Calif. site....we are well, my sone broke a bone in his foot and he has not been able to walk since. We try our best to encourage him ....but he says he can't even though the Doc. says he ahould be able to. We just encourage movement so we go in the pool almost every day.
At 11:34am on May 15, 2010, Marisol said…
How do I get on the California group?? It has been a while since I connected with folks on this site....things get tougher as this journey advances. My son broke a bone in his foot yesterday and it really worries me,
At 4:04pm on March 1, 2010, Christine McSherry said…
HI Julie!

The JettRide ll is heading through Sacramento during the first part of the ride, planning on coming in on June 28th....can you help? Would love to have you involved!!!!!

Christine 781 254 2669
At 11:32am on February 24, 2010, Cindy said…
Hi Julie, My son is 16 with DMD/BMD we live in Southern California, but would like to communicate with you on care and other things. We will be up in Northern California-San Jose for a Regional Power Wheelchair Soccer Tournament March 5 -7th. Not sure how far that is to Sacramento. Thought maybe Nick would like to speak with my son, Taylor. I am not on this site much, but you can find Taylor or me on Facebook.
At 10:09pm on January 20, 2010, Tammy said…
hi julie...its been quite sometime...how is everything? Hope you had a wonderful holiday,
At 10:00pm on December 8, 2009, Debra Chiabai said…
Hi Julie,
Our doctor here in Ottawa has a vibration therapy study ready to go but doesn't have funding yet. As soon as she does, Alex is in the study. Hoping for the new year. I'll let you know how it goes.

Hope all is well. Will you be at the conference this year?

At 8:52pm on December 3, 2009, Christina said…
Hi Julie,

Just dropping a quick note to see how things are going. I haven't been on the PPMD site in so long and it seems like it's growing like crazy! Just found Cathie Bullis, who also lives here in Davis. I hope to meet her at some point...she sounds like an amazing grandmother!

Hope all is well in your household. We're doing much better now that I was finally able to get rid of the flu bug...yuck! I'd love to catch up and see what I missed from the Dublin conference.

Talk to you soon,

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