Julie-Anne
  • Female
  • Sydney NSW
  • Australia
Share on Facebook
Share
  • Featured Blog
  • Discussions
  • Events
  • Groups
  • Photos
  • Photo Albums

Julie-Anne's Friends

  • Deb Robins
 

Julie-Anne's Page

Profile Information

About me:
Mum of 3 working from home now in our own business formerly worked in special ed
About my family:
Son Mark 22yrs
daughter Kristy 21yrs
son Jacob with DMD 16yrs
husband Chris in Finance
Name(s) of child(ren)/individual(s) with Duchenne:
Jacob
Age(s) of child(ren)/individual(s) with Duchenne:
13-18
City:
Sydney NSW

Comment Wall (3 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 4:42am on February 18, 2009, Sharyn Thompson said…
This is for all Australians affected by DMD. The inaugural "The Tour Duchenne" will start in Sydney on March 7th at 7am and will end in Melbourne on March 16 at around 2.30pm.

The riders will start their journey at The Institute for Neuromuscular Research (INMR), based at The Children’s Hospital at Westmead, then make their way via Wollongong, Batemans Bay, down the picturesque south coast of New South Wales, through country Victoria and then onto Melbourne, where they will finish at the National Muscular Dystrophy Research Centre (NMDRC).
 


Our plan is for this to become a huge nationwide event, so we need your support for this initial ride. You can view all the details about the ride and its participants at www.tourduchenne.com.

Please ask everyone you know to support this fantastic cause. Our aim is to raise $1million to go towards finding a cure for this insideous disease. Whilst a cure may be too late for some boys, we can spare future generations from suffering from DMD.

For those people based in Sydney, there is a "Farewell" event at The Cargo Bar on Wednesday, March 4 2009. Admission is $100 and will include food and drink, silent auctions, celebrity host Tom Williams, and guest speakers. There will also be lucky door prizes, and all $100 tickets receive 5 entries into our guessing competition, with some AMAZING prizes. You can see a list of prizes on our website. To buy tickets to this event, please visit the site http://www.mda.org.au/events/tourD/launch.asp.

We need your support, and that of everyone you know. We HAVE to find a cure, we all want our little boys to grow up and be wonderful, happy and healthy adults. We can achieve this by starting here!

Also, if you (or anyone you know) needs to contact me at all, you can reach me on realthomo@hotmail.com or here on PPMD. Any questions at all, I will be able to answer.
At 3:13am on January 16, 2009, Michelle Bignold said…
Hi Julie-Anne,

I have a close girlfriend who's son is has MD and I am organising a walk-athon to help raise money for research. If you would like to be involved please let me know and I can send you the sponsorship form.

Walk for MD

April 5, 2009 at 10:30am – Manly Beach, Sydney TAKING THE STEPS TO FIND A CURE When: Sunday 5th April, 2009 Where: Manly Beach, Sydney Start: Queenscliff Surf Life Saving Club @ 10:30am Return to Surf Life Saving Club for Sausage Sizzle Route... Organized by Michelle Bignold |

It should be a great family day out.

Michelle
At 1:53am on June 8, 2008, Deb Robins said…
Hi Julie-Anne, can you make it to our conference room to chat with Sue Fletcher now? See Pam's email earlier in the week. We started an "Aussies" group on here too. Deb
 
 
 

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service