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Joy Narmore
  • Female
  • Canal Fulton, OH
  • United States
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Joy Narmore's Discussions

scoliosis

Started Jul 8, 2016 0 Replies

My son is 14,  and his docs at Scottish Rite Hospital think he needs the spinal fusion surgery for his scoliosis.  I am terrified about the possible complications with this surgery. Does anyone have…Continue

scoliosis

Started this discussion. Last reply by Brenda Sep 2, 2016. 2 Replies

My son is 14 and we just saw his docs at Scottish Rite Hospital.  They say he needs to have the spinal fusion surgery for his scoliosis. I am scared to death about all the complications that are…Continue

fosamax

Started this discussion. Last reply by Jonathan Jun 25, 2014. 1 Reply

My doctors keep pushing Fosamax for my son, but I have heard of many dangers with it including: jaw necrosis, thigh fractures, and esophageal cancer.  Has anyone had experience with this?Continue

mda clinics

Started Apr 25, 2014 0 Replies

Hi,My son has DMD and we now live near the main research center in Columbus, Ohio.  We found out that my husband is being transferred to the Atlanta area and wondered if anyone could give us any…Continue

 

Joy Narmore's Page

Profile Information

About me:
Mother of two sons, live in Ohio
About my family:
Husband Brett, sons Isaiah and Ben
Name(s) of child(ren)/individual(s) with Duchenne:
Ben
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Canal Fulton Ohio

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At 8:54pm on August 23, 2011, Darcy Tumminello said…
Joy,  My son is 9.5 and has had four fractures in 24mths. Dr. Wong just did test to make sure all fine....and his bones are still fine.  He's been on meds since 5. He's just had some real bad luck...thank goodness all is well.  Three in left arm and one in foot.  Good Luck.
 
 
 

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