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Joseph Steven Burr
  • Male
  • Festus, MO
  • United States
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Joseph Steven Burr's Friends

  • Annie Kennedy
  • Lacey rivera
  • Chris Diemler
  • Claire Diemler
  • Jeffrey Kopp
 

Joseph Steven Burr's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Evan Torrence Burr
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Festus
State:
Missouri

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At 7:17pm on March 8, 2014, Richard Darienzo said…
At 8:34pm on December 17, 2013, Jeffrey Kopp said…
At 8:34pm on December 17, 2013, Jeffrey Kopp said…

Hi Joe, thanks for the friend request. Our son Liam sees Dr. Alan Pestronk at the Neuromuscular Disease Center at Wash U. School of Medicine, which is by Children's Hospital/Barnes Jewish in the Central West End. We highly recommend him! Dr. Anne Connelly is great, too (she's part of the same center). They're both on the cutting edge of treatments and care for children with Duchenne, and work with the local office of the MDA.

 
 
 

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