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Joel Rhodes posted a blog post

What is Normal

Yesterday, I found myself forgetting about DMD. As we might think, this is a great thing, I realized how it can be bad also. You see I had two of my boys with me while I was shopping (Levi 4 who has DMD and Ben who is 2). I was trying to get through the store, and found myself getting irratted at both the boys to hurry up. At one point I look down and see Ben at my feet, but did not see Levi. Thinking Levi is probably playing on the aisle we were just on, I tell Levi "to come right now, and he…See More
May 26, 2009
Joel Rhodes joined Gregory's group
Feb 16, 2009

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Levi
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Los Banos, CA

Joel Rhodes's Blog

What is Normal

Posted on May 26, 2009 at 12:33pm 2 Comments

Yesterday, I found myself forgetting about DMD. As we might think, this is a great thing, I realized how it can be bad also. You see I had two of my boys with me while I was shopping (Levi 4 who has DMD and Ben who is 2). I was trying to get through the store, and found myself getting irratted at both the boys to hurry up. At one point I look down and see Ben at my feet, but did not see Levi. Thinking Levi is probably playing on the aisle we were just on, I tell Levi "to come right now, and he… Continue

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At 10:55pm on April 16, 2009, Julie Garcia said…
Joel,

I hope you got Brian Tseng's contact information. He is another resource for steriod information and a good person!
At 10:55pm on April 16, 2009, Julie Garcia said…
Thanks Joel!

Looking forward to meeting you in person too!

Take care
At 2:23pm on April 15, 2009, Julie Garcia said…
Hi Joel,

Did not know you were on facebook. Good to connect! I will be dropping Nick off at 7:45 am on Friday and then I should be able to scoot over to Shriners. I think we will recognize each other from our pictures...I hope. My cell is 916 317-9280
At 12:48am on April 15, 2009, Julie Garcia said…
Joel,

That is great news! Thanks for making the call. I am off work all this week. What time will you be at Shriners?

I would love to meet you guys.

Julie
At 6:50pm on April 14, 2009, Julie Garcia said…
Hi Joel!

I just left the message below on Ruth's web page and wanted to make sure you had this same message. Please see below

I just wanted to get the word to you and Joel that I believe I made contact with your House member's Merced office to request a sign on for the PPMD letter we are circulating with the House members. My Rep, Doris Matsui is co-sponsoring the letter and can be contacted by your member to sign on. If your member is Dennis Cardoza please call tomorrow and let Stacie in the Merced office know you wish to have his support on this important letter. Stacie can be reached at 209 383 4455. I sent an e-mail to a friend at work who forwarded my e-mail to Stacie. The more calls the better and most likely he will sign. We only have until this Friday, 4/17 for final signatures.

I will let Joel know and I will forward my e-mail to the @tds.net e-mail.

I hope all is well.

Take care,

Julie
At 7:07pm on February 16, 2009, Gregory said…
Thanks for joining my group! Looking forward in getting to know everyone.
At 6:47pm on February 16, 2009, Gregory said…
Please join our San Francisco Bay Area Families group.

Greg
At 7:06pm on October 29, 2008, Kim Maddux said…
Hi - Thanks for adding. Yes, Antioch is not that far from here. I have many friends and former coworkers from there. Your son is adorable. Alex is still doing pretty well. We got our diagnosis 4 years ago. Take care.
At 8:20pm on September 6, 2008, Julie said…
Hey Joel

What was the name of the book you talked to us about at the poker run Aug 23, 2008. We can't remember the title.
Thanks
Julie Malecha
At 1:53pm on September 5, 2008, Julie said…
Joel
It was so nice to meet you and your family. I hope the training for next years half marathon is going good. Hope you are all well
Julie Malecha
 
 
 

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