"Not being an expert on anything but I am an RN with a DMD grandson--I would feel that this may not have anything to do with DMD--it sounds like any number of things including Lyme disease. I would have him checked."
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Joanne Haswell
- Female
- Derry, NH
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Joanne Haswell's Groups
Joanne Haswell's Discussions
Pepsi Refresh Project to win money for BDMD RESEARCH
Started this discussion. Last reply by Terry Porcaro Jun 17, 2010. 6 Replies 0 Favorites
funding research
Started this discussion. Last reply by Joanne Haswell Jun 8, 2010. 2 Replies 0 Favorites
funding for research
Started this discussion. Last reply by Joanne Haswell Jun 6, 2010. 9 Replies 0 Favorites
Joanne Haswell's Page
Latest Activity
Joanne Haswell replied to Geraldine Coolidge's discussion aches and pains in the group Canadian Families
Joanne Haswell replied to Joanne Haswell's discussion Co Q 10 levels"We use Co Q 10 chewable tablets from Epic 4 Health with no problems.
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Amanda Hammond replied to Joanne Haswell's discussion Co Q 10 levels"My son has just started taking Co Q 10. We bought the Qunol Liquid. He doesn't like the test and won't drink it. I tried it and I don't blame him it is terrible. He isn't old enough to take it in pill form. Do you have any ideas…"
Joanne Haswell replied to Tonya's discussion Camp for younger boys"This sounds great--I know my daughter is interested. Lukey's Grandma"
Joanne Haswell posted a discussionPepsi Research Project to win money for BDMD RESEARCH
We are #12 today--Please keep voting every day for Jett Foundation in the Pepsi Refresh Project. Some of the leaders are a weight room for a school and Screaming Horror Film Festival. We know they and all their friends ++ are voting every day--we can do it--our boys NEED this money for research which will help all our boys and all the organizations that have joined in this for research. See More
Profile Information
- About me:
- I am Lukey's grandma
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Newfields, N.H--Lukey, Derry, N.H--Grandma
- Country:
- United States
Comment Wall (3 comments)
- At 7:40pm on May 15, 2009,
jenn said… - my mom is laurie webb, her profile pic is my son austin on a tractor. i set up her page, she is very new to the site, and to internet in general but needs to connect with other grammas who "get it" so feel free to send her a message
- At 4:13pm on February 11, 2009,
Terry Porcaro said… - Hi Joanne: Yes, I remember the day that I wrote the blog "Monkey on My Back". I just had to express my feelings. You are right that only families who are actually going through something like this can truly understand each other's feelings. I am surrounded by a wonderful family and good friends who are very kind and compassionate, but I realize that most of the time they don't really "get" it. (Not completely, anyway.)
- At 4:22pm on February 10, 2009, Terry Porcaro said…
- Hi Joanne: You left a comment for me stating that I described your life to a T, but I'm not sure what I wrote. Was it something I wrote a while ago? Did we meet at the conferences in Philadelphia --not this past July, but the one before that? Terry (Grandmother to Cole and Jack)
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Events
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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