Joanne Ewins
  • Female
  • Dorset, England
  • United Kingdom
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  • lisa kirby
  • paula steele
  • Andrea Cleary
  • anne
  • Lisa Groeger

Joanne Ewins's Discussions

Protein Shakes with Steriods

Started this discussion. Last reply by Joanne Ewins Aug 11, 2011. 2 Replies


Joanne Ewins's Page

Profile Information

About me:
I have been married for 12 years but we have been together fo 19 years. I have 3 children Laura aged 11, Robert aged 9 and Jack aged 5.
I love swimming and being outdoors.
About my family:
I have 3 beautiful kids. The last couple of months have been very difficult with blood tests and muscle biospy which last week we found out both my sons Robert 9 and Jack 5 have duchenne muscular dystrophy. We are devastated.
My daughter Laura aged 11 was diagnosed at age 7 with Coates Disease and is blind in her right eye, this is a rare condition which like md mostly effects boys so girls affected are rarer still.
Name(s) of child(ren)/individual(s) with Duchenne:
Robert and Jack
Age(s) of child(ren)/individual(s) with Duchenne:
4-6, 7-12
Wimborne, Dorset

Comment Wall (4 comments)

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At 7:20am on July 17, 2011, lisa kirby said…

hi joanne thanks for your comments finding things difficult at the moment is that normal??

Im ok one minute the next im a mess need to find a way of coping.

At 2:18pm on June 17, 2011, Lisa Groeger said…
Hi, just read your post on Mom's Cafe..I have 2 boys with DMD 13 and 16 and a healthy 9 year old boy.  My husband walked out 5years ago..I would love to chat..even in the DMD world sometimes i feel isolated because 1. I have TWO with it and 2. no husband for i get it...Lisa
At 5:15pm on December 29, 2008, Danielle said…
Hi, would you like to join the group I've just set up for families in the U.K on here?

At 5:15pm on November 23, 2008, Jennifer Collier said…
Welcome Joanne, to PPMD. Wow. I am so sorry to hear of your sons' diagnosis, and of your daughter's rare disorder. You have come to the right place. You will find a wealth of information and support on this site. My thoughts and prayers are with you during this tough time.

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