I have been married for 12 years but we have been together fo 19 years. I have 3 children Laura aged 11, Robert aged 9 and Jack aged 5.
I love swimming and being outdoors.
About my family:
I have 3 beautiful kids. The last couple of months have been very difficult with blood tests and muscle biospy which last week we found out both my sons Robert 9 and Jack 5 have duchenne muscular dystrophy. We are devastated.
My daughter Laura aged 11 was diagnosed at age 7 with Coates Disease and is blind in her right eye, this is a rare condition which like md mostly effects boys so girls affected are rarer still.
Name(s) of child(ren)/individual(s) with Duchenne:
Robert and Jack
Age(s) of child(ren)/individual(s) with Duchenne:
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Hi, just read your post on Mom's Cafe..I have 2 boys with DMD 13 and 16 and a healthy 9 year old boy. My husband walked out 5years ago..I would love to chat..even in the DMD world sometimes i feel isolated because 1. I have TWO with it and 2. no husband for support..so i get it...Lisa
Welcome Joanne, to PPMD. Wow. I am so sorry to hear of your sons' diagnosis, and of your daughter's rare disorder. You have come to the right place. You will find a wealth of information and support on this site. My thoughts and prayers are with you during this tough time.