My name is Jo-Anne Pretorius. I am a married to Fred and a mother of 2 boys. I work part time and love working with people. We moved to Australia in 2003 and love living here.
About my family:
I have 2 sons, my eldest son is Wayne who is 17 and my youngest son Kevin who is 14. Kevin was diagnosed with DMD just at the end of 2006 and the final diagnoses came in during March 2007, just over a year ago. He is still walking and has always walked on his toes. There is so much to learn and we as a family are taking one day at a time.
Name(s) of child(ren)/individual(s) with Duchenne:
thanks for getting back to me, how are you doing today, i have to ask does it snow when in the fall and winter there. i live in usa all the way in the seattle area. i am very bless and able to go to the ymca five days week, tranning very hard for the run for our son half marathon. i live with my who happens to be my cargiver. i am very indepent that is very important to me, my hips rotae out, and had 14 operation i also have a learing dislabliy anxity and desspresson,but that does not slow me down. as long as i can still get up and move this body i will do everything i can to help these boys. kimmy
OMG , i did on think tina harris was so well known ... ok the photo of me on face book is nothing like my PPMD photo. on face book i am on my own and i have my hair strath and its brown i have a green top on... i am friends with deb ... what is your email address and i will try to find you agen..... don't stress we will find each outer ..... chat to you on the face book soon
Just looking at your photos today and they are good. Before we found out about Tyran having DMD we had a Photo biz called Super Flash.... and we did a hep of weddings but that was some time ago like 7 years ago.
I am going to join the croup Digital for Duchenne. With out photos of our boys we are truly lost... I hope you liked the photos of Tyran and Darren at Airs Rock l up dated not long ago.
Tyran is just at the end of his time walking. He just cannot do it any more. There is not many PPMD Family's that live close to us hear on the Central Coast. There are 4 family's ( including your family ) up your way but thats as far as they go. I am so happy to now find a way to chat to outer mums just like me.
Thank you also for joining our Starlight Wish group.
She asleep, she had a good one. OMG cant believe that she 18 next year. Where the hell did the years go to.. My mom is really bad, and believe my thanks for the prayers but they dont work.. She has got so much worse.. I will tell her in the morning, that u sent her a message, sure she will appreciate it.. She does not even mention you guys anymore.. She just wonders how Kevin is doing and I said to her if Kevin got worse u would let us know.. Hope he doing well.
Hi Jo-anne. Thanks for the note. Sorry that it took so long to respond, but life seems rather chaotic and somehow email is the last thing that I get around to. It was wonderful to hear that your son is still walking at 12 - let's hope that Daniel will be too! I was interested to see that you had joined a Christian DMD group. Is it just a chat group? The pics of Seaworld are such fun.