Started Apr 21, 2013 0 Replies 0 Favorites
Started this discussion. Last reply by Jim & Melissa Smith Jan 19, 2012. 4 Replies 0 Favorites
Started this discussion. Last reply by Tulika Apr 14, 2009. 3 Replies 0 Favorites
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I talked with Lori last night, and she suggested that we get in touch, so I was excited to see you had added me already. We are in the first stages of this ourselves, having just found out about Jake the Friday before Thanksgiving. So, we're still kind of in shock somewhat, but boy are we ready to come out swinging! LOL. I'd love to talk more about your son, and maybe get together at some point. I understand Blairsville is only a few hours from Knoxville. I hope you all are embarking a very fun weekend and wish you all the best!
I'll be on my back porch praying soon for you guys!
I know a drive from Georgia here probably isn't something you want to do in a day, and MDA clinic is only on Thursday. Just let us know how we can help if at all. I did just start a group called Middle Tennessee / Vanderbilt. So we shall see who all replies. Also - yes - can you imagine what it would be like going through this with no image of christ or faith in a plan for your life? I'm actually Presbyterian which believes in a pre-destination theology...so I guess I am living out what I was pre-destined for! When I look at the blogs of parents who have multiple children with this...I just sigh out of extreme sadness for them, and praise God for the mercy he gave me. I could have 3...and as we all learn as we get older ...your mind and your heart are your greatest assests ...as gross as it is ...it could be worse. Keep your chin up and then call on your friends to hold it for you if need be!
As it is only 16 days from your confimred diagnosis I know that you are in shock and depressed. I know I was - plus I had to worry my other 2 boys had the disease. I assume there are no issues with Nathan? Just give yourself some time to "process" ...and then get on to living your life with all 4 of your children even though you know changes are ahead. The best advice we were given from one of our docs - who has actually lost a child in high school to cancer years ago...was "don't get so far ahead of yourself. Take it one day at a time , one month at a time.....looking into the future is pointless. " It will take away energy that you need every day - to just get through the day with 4 kids. " The sooner you can adjust to the disappointment the sooner you can move on to caring for all the members in your family , and believe me, the other 3 siblings will be such a huge blessing to him. I'm not sure what my son would do without his 3 siblings even though there is a huge age difference. I don't know if you are a christian or not - but I will certainly pray for your family during this time of grief. It's just not supposed to turn out like this , but it has. And I would rather deal with it...than it deal with me. Embrace your challenge and move forward as best you can - even if there baby steps!
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