Single dad in Palm Springs, Ca with an 8 year old and 5 year old son. 8 Year old has DMD. I really hope to connect to families closer to us to meet or just share experiences with. I have recieved poor care from Loma Linda, and poor support from the MDA. Why doesn't Riverside County have more resources? That is something I am going to advocate for. Please check out my page on facebook...LIVING WITH DUCHENNES MUSCULAR DYSTROPHY. It is a new page i started. It is simply a place where i can talk about new experiences, good and bad, and perhaps open up about the terrible stress and void I have in my heart because of this...Thanks..
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Single dad in Palm Springs, Ca with an 8 year old and 5 year old son. 8 Year old has DMD. I really hope to connect to families closer to us to meet or just share experiences with. I have recieved poor care from Loma Linda, and poor support from the MDA. Why doesn't Riverside County have more resources? That is something I am going to advocate for. Please check out my page on facebook...LIVING WITH DUCHENNES MUSCULAR DYSTROPHY. It is a new page i started. It is simply a place where i can talk about new experiences, good and bad, and perhaps open up about the terrible stress and void I have in my heart because of this...Thanks..