Jill lancaster
  • 50, Female
  • Riverside, CA
  • United States
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  • Leigh Alisen Pernosky

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Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Riverside california

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At 6:50pm on February 20, 2012, Mark Perrotte said…

Single dad in Palm Springs, Ca with an 8 year old and 5 year old son.  8 Year old has DMD.  I really hope to connect to families closer to us to meet or just share experiences with.  I have recieved poor care from Loma Linda, and poor support from the MDA.  Why doesn't Riverside County have more resources?  That is something I am going to advocate for.  Please check out my page on facebook...LIVING WITH DUCHENNES MUSCULAR DYSTROPHY.  It is a new page i started.  It is simply a place where i can talk about new experiences, good and bad, and perhaps open up about the terrible stress and void I have in my heart because of this...Thanks..


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