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Jessica Stevens
  • Female
  • Thorhild, Alberta
  • Canada
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Jessica Stevens's Friends

  • Jay Griffin
  • Andrea Cleary
  • Carol Keskeny
  • PPMD

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Latest Activity

Jessica Stevens is attending PPMD's event
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[Upcoming Webinar] NS Pharma's Exon 53 Skipping Program at Online Webinar - Eastern Time Zone

November 16, 2016 from 1pm to 2pm
Wednesday, November 16 at 1:00PM ESTPlease join Parent Project Muscular Dystrophy and NS Pharma (US subsidiary of Nippon Shinyaku, Co.,Ltd) as we host a webinar Wednesday, November 16th at 1:00 PM EST to discuss NS Pharma's Exon 53 Skipping Program.Dr. Clemens and Lauren Morgenroth will review data from the Phase I study conducted in Japan and will present the study design for the trial that is opening in the US later this month.Speakers:Abby Bronson Senior Vice President of Research Strategy,…See More
Nov 13, 2016
Jessica Stevens commented on Dee's group Mom's Cafe
"Andrea, I can't get that Facebook link to work can you re-post it, thanks!"
Apr 3, 2016
Jessica Stevens commented on Dee's group Mom's Cafe
"Thank you Andrea, we were planning on building before we found out about Jacob, and we still are but now I am going to change the house plans that we have, he will need a bigger bathroom among other things. Thank you for your feedback. "
Apr 3, 2016
Jessica Stevens commented on Dee's group Mom's Cafe
"Thank you Carol & Andrea. I have a few questions for you parents, we were planning on building a house for the past couple months, and the doctors said there was a possibility that my Jacob had Duchenne, so I had my in my plans 3' foot…"
Apr 1, 2016
Jay Griffin left a comment for Jessica Stevens
"Jessica I am a dad who is having a hard time as well. I would love to chat about our feelings and concerns about our boys"
Mar 31, 2016
Jessica Stevens commented on Dee's group Mom's Cafe
"I just found out this week that my 4.5 year old son has DMD, I am really having a hard time, all of you parents are amazing, how do you keep going? "
Mar 30, 2016
Jessica Stevens joined Dee's group
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Mom's Cafe

A group for Mom's who like to vent and talk about life with DMD kids
Mar 30, 2016

Staff
PPMD left a comment for Jessica Stevens
"Welcome Jessica...we're glad you found PPMD. Have you explored the "New Diagnosis" section of our website? That is a good starting point for…"
Feb 8, 2016
Jessica Stevens is now a member of PPMD Community
Feb 8, 2016

Profile Information

About me:
I just found out my child has Duchenne MD. I am hurt beyond words. I can't stop crying because I know what is to come. I joined this group so I can talk with other people who are going through the same thing.
About my family:
I have 4 children 2 girls, & 2 boys. One who is 4.5 was just diagnosed. My other son does not have the DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Jessica Stevens
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Thorhild
State:
Alberta

Comment Wall (2 comments)

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At 6:28am on March 31, 2016, Jay Griffin said…
Jessica I am a dad who is having a hard time as well. I would love to chat about our feelings and concerns about our boys
At 11:37am on February 8, 2016,
Staff
PPMD
said…

Welcome Jessica...we're glad you found PPMD. Have you explored the "New Diagnosis" section of our website? That is a good starting point for information: http://www.parentprojectmd.org/site/PageServer?pagename=Understand_diagnosis

Please don't hesitate to contact us by phone, email, or message if you have any questions regarding care, research, genetic testing results, etc. We can connect you with the appropriate staff member who can help -- 800-714-5437 -- community@parentprojectmd.org


 
 
 

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