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Jessica Stevens
  • Female
  • Thorhild, Alberta
  • Canada
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  • Jay Griffin
  • Andrea Cleary
  • Carol Keskeny
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Profile Information

About me:
I just found out my child has Duchenne MD. I am hurt beyond words. I can't stop crying because I know what is to come. I joined this group so I can talk with other people who are going through the same thing.
About my family:
I have 4 children 2 girls, & 2 boys. One who is 4.5 was just diagnosed. My other son does not have the DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Jessica Stevens
Age(s) of child(ren)/individual(s) with Duchenne:

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At 6:28am on March 31, 2016, Jay Griffin said…
Jessica I am a dad who is having a hard time as well. I would love to chat about our feelings and concerns about our boys
At 11:37am on February 8, 2016,

Welcome Jessica...we're glad you found PPMD. Have you explored the "New Diagnosis" section of our website? That is a good starting point for information: http://www.parentprojectmd.org/site/PageServer?pagename=Understand_diagnosis

Please don't hesitate to contact us by phone, email, or message if you have any questions regarding care, research, genetic testing results, etc. We can connect you with the appropriate staff member who can help -- 800-714-5437 -- community@parentprojectmd.org


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