"I found the video under caring for him section on ppmd site. It's a pdf file that you can download"
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Jessica Keim May
- Female
- Richmond Hill, GA
- United States
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Wyatt's Mommy, Melissa replied to Jessica Keim May's discussion 18 month old advice please in the group Early Years (diagnois-age 6)Wyatt's Mommy, Melissa replied to Jessica Keim May's discussion 18 month old advice please in the group Early Years (diagnois-age 6)"I think there is a video on this site on how to do the stretches. You could also email pt at cincinnati childrens and they would probably email you a copy of the stretches. I'm glad to hear that exon skipping will work for him. Wyatt is…"
Jessica Keim May replied to Jessica Keim May's discussion 18 month old advice please in the group Early Years (diagnois-age 6)"Thank you so much for the comments and advice! Yes, this is really overwhelming. So far I think we've done pretty well, Markie was in PT and OT before we were even diagnosed and has been in ST for a month now. We've been…"
Wyatt's Mommy, Melissa replied to Jessica Keim May's discussion 18 month old advice please in the group Early Years (diagnois-age 6)"Hi Jessica,
How are you! It's nice to cyber meet you! We found out that Wyatt had DMD when he was also very young (10months). It's so hard to look at your sweet little baby and think, "oh man, we are in for quite the…"
Cathy Johnson replied to Jessica Keim May's discussion 18 month old advice please in the group Early Years (diagnois-age 6)"My son James was diagnosed at age 3 and started steroids and night splints just before his fourth birthday. We are religious about stretches. He was doing PT, but the therapist doesn't think he needs it just yet. He also takes…"
Betty Vertin replied to Jessica Keim May's discussion 18 month old advice please in the group Early Years (diagnois-age 6)"Hi Jessica,
My name is Betty. I have 3 sons with DMD. My oldest was diagnosed at age 4, my second son was 2, and I was pregnant with my youngest and I knew right away he had DMD too. We taake all of our boys to Cincinatti Children's Hospital to…"
Jessica Keim May added a discussion to the group Early Years (diagnois-age 6)
18 month old advice please
My son Markie is 18 months old with DMD, we've known officially for 3 months. In some way I think I've known since he was 3-6 weeks old. Just had a feeling something was different. So my questions are... What should I ask his doctors? Is there any advice you have as parents? Are there any Doctors that are highly recommended? I would travel anywhere. Looking or any advice I can get. Thank you!
Profile Information
- About me:
- My name's Jessica and I'm Veteran and a Mommy to a beautiful 3 month old boy named Markie. He was diagnosed at 14 months in Oct 2012, I cannot believe how fast the time is flying.
- About my family:
- We're a family of 3 plus a pup. My husband, Mark, is in the Army and we're currently in Richmond Hill, Ga (just outside of Savannah). Our wonderful families are spread out across the country... Michigan, Pennsylvania, Florida, Arizona and Nevada. We travel a lot!
- Name(s) of child(ren)/individual(s) with Duchenne:
- Markie
- Age(s) of child(ren)/individual(s) with Duchenne:
- 0-3
- City:
- Richmond Hill
- State:
- GA
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