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Jennifer and Billy Hollingsworth
  • 43, Female
  • Gainesville, GA
  • United States
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Jennifer and Billy Hollingsworth's Friends

  • Leeandra Arhdeacon
  • Dee
  • Deirdre Stinchcomb
  • Jim & Melissa Smith
  • Pat Furlong
  • Samantha Dearing
  • J's mom
 

Jennifer and Billy Hollingsworth's Page

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Jennifer and Billy Hollingsworth might attend PPMD's event
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2015 Annual Connect Conference at Washington, DC

June 18, 2015 to June 21, 2015
Parent Project Muscular Dystrophy’s Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne, and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than that, it is a way for families affected by Duchenne to connect with each other. To build support networks. To realize no one is on their own in the fight to end Duchenne.This…See More
Apr 20, 2015
Jennifer and Billy Hollingsworth commented on Lisa Jones's group Cincinnati Children's Hospital Medical Center
"We will be in Cinci December 5 & 6.  Anyone else be there then???"
Nov 19, 2012
Jennifer and Billy Hollingsworth joined Kari's group
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Dad's Only

Become leaders in our community, Build a stronger bond between fathers and their children, Enjoy the rewards, that being a father involved in your child's life, gives.
Jun 5, 2012
Jennifer and Billy Hollingsworth joined Dee's group
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Mom's Cafe

A group for Mom's who like to vent and talk about life with DMD kids
Jun 5, 2012
Jennifer and Billy Hollingsworth commented on Lisa Jones's group Cincinnati Children's Hospital Medical Center
"Hi all!  We will be in Cincinnati seeing Dr. Wong on this Thursday, June 7th.  Will anyone else be there then??"
Jun 5, 2012
Jennifer and Billy Hollingsworth and Leeandra Arhdeacon are now friends
Aug 25, 2011
Jennifer and Billy Hollingsworth commented on Lisa Jones's group Cincinnati Children's Hospital Medical Center
"Hi Lisa.  I have BCBS also and they have been a nightmare about paying "in network".  Do you have any tips, etc. that you could share as to how you got them to pay so well?    Also, we will be there the week of…"
Aug 8, 2011
Jennifer and Billy Hollingsworth commented on PPMD's group Duchenne Parents
"Hi!  Is anyone going to the Annual Conference?  We are thinking of going - it would be our first one.  Has anyone gone before?  Would love some input!!!!  Thanks!!!"
May 23, 2011

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Will
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Gainesville, GA

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Comment Wall (7 comments)

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At 6:34pm on May 23, 2011, Jeni Ward said…

I wanted to reply to your questions about the Connect Conference.

I am not going this year, but I went last year, and it was great. I learned so much, met lots of other families, and left very hopeful and packed full of information.

I would suggest that you go, if you can. I did not have my son with me (he is 6), but there was  cool kids track if you want to bring your son- he looks older- what a cutie!

We live on the West Coast, and won't be able to get to Baltimore this summer. But you should go- you won't regret it!

Jeni Ward

At 9:38pm on November 8, 2009, J's mom said…
Hi Jennifer! It was so great to meet you and your precious Will last week! I'm so glad we got to talk albeit briefly. I would love to keep in touch. I also wanted to let you know that I think we are having a get together on Sunday, December 13th at our house with the families that I told you about. I know it's a little far for you, but we'd love for you to come if are up for the drive. You are welcome to stay Saturday night with us if you wanted. Hope you had a safe trip home and that your week gets off to a great start! :-)
At 8:24pm on March 6, 2009, Allison & Whalen Kuller said…
Hi Jennifer -

We just got back from seeing Dr. Wong late last night (Thursday night) - I'm shocked I didn't see you there! This is the first time that I have seen so many boys with DMD in all our visits (we've been seeing her for about 3 years, I think).

Anyways, we live in Atlanta. Blake is my oldest (he will be 13 next month) with DMD. We have 3 younger (Jackson 9, Lauren 6 and Ansley 4) who are all healthy).

Was that your first visit? My best friend from High School lives in Florence, KY (just over the bridge) so we stay with or near her family.

Take care!

Allison
At 3:55pm on March 5, 2009, Leslie Guzman said…
Hi Jennifer, I have a 4 yr old with DMD and 3 boys. I live in Cincinnati, next time I would love to meet you. I live just 15 min from the Hospital very close to Kenwood mall.

Glad to hear your appointments went well!

Leslie
At 11:53am on March 5, 2009, Lee Ann Faeth said…
Hi Jennifer, we just got back from a week long trip to Cincinnati last week too. I wonder if we passed each other in the Neurology department. We had appointments on 2/24, 2/25 and 2/26 and I think I may have seen your little guy in the waiting room. I'm glad to hear that you had such a wonderful experience at CCHMC. The entire staff is amazing. :)
At 10:47pm on August 29, 2008, Jim & Melissa Smith said…
Hello Jennifer and Billy. This is the first place we have been able to connect with anybody else, Ga or otherwise, who is in a similar situation. Brandon is 8, and technically still being diagnosed. Dr Sladky is pretty certain its DMD, but the first DNA test didnt show anything. We are waiting for results from round 2. Its scary to be torn between praying its not DMD, and what else could be wrong with my son.
At 10:08pm on August 27, 2008, Deirdre Stinchcomb said…
Welcome to PPMD. So glad you found us.
 
 
 

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