It was great meeting you!!! I love all of your family pictures :-). I think the two of you are so proactive seeing Dr. Wong. I'm so glad I ran into you and hope to see you again. Please always know you can email or call me for anything. We all need each other and need the support. It will get easier, it will always be there, but it's does get more "normal", it's just a different Normal. I didn't think it would, but I promise it will!!!!! Hang in there and know you have me and all the rest of us if you need anything.
hey jennifer how are you, how the weather right now, we are hoping to have spring soon, in the seattle area, tried of all this rain. your son is very cute its good to be back at the ymca, i been going off and on for a month, haveing to deal with the sinus infection. i see anthony likes baseabll. does he like the deriot tigers. kimmy
Hi Jennifer i have big shoulders,any time you need to talk.Life will never be the same,but it goes on, so do we.I found that hard,felt my world hIt is good to talk about it with someone in the same predicatment,sometimes i think my friends do not understand my anguish and this site is great.I have good and days and bad,but hoping and praying for a treatment.take care Clare
Hi Jennifer,welcome!! I am new to this site as well but the wealth of knowledege and guidance i have found here is immense.It made me realise i am not on my own....It took me a long time to even read about Duchenne after the initail diagnosis but this site is a comfort and i check it daily!!.
Hi Jennifer! Welcome to PPMD! My son Louie is 3 and was diagnosised in September. We recently moved to Kalamazoo, MI. Do you have a neurologist in Michigan? We see Dr. Dowling out of U of Michigan and love him and his entire staff! I have found PPMD very comforting and full of useful information. Best of luck to you and your family! Nicole