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Jennifer Collier 48, Female Troy, Michigan United States: Favorite

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Michigan Families

42 members
41 Comments 2 Favorites
Duchenne MD & Autism Spe…

10 members
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Single and dealing with …

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Duchenne Smiles

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Lose to Cure MD

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Jennifer Collier's Discussions

3 Year Old Insomniac - HELP please!!!!!

Started this discussion. Last reply by Joshua's mom Jul 17, 2011. 13 Replies 0 Favorites

Children's Book Fundraising Idea

Started Jan 6, 2009 0 Replies 0 Favorites

Hippotherapy?

Started this discussion. Last reply by Lyndsey Manderfield Jul 15, 2009. 28 Replies 0 Favorites

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Jennifer Collier and Ryan

Profile Information

About me:: I am the mother of two beautiful children. A daughter, Sarah-Marie who is ten, and a son, Ryan who is eight. I am a stay-at-home mom with a part-time job as a home health care aide. I am an avid sports fan, especially hockey and football!!!! I love the Detroit Red Wings and the Michigan Wolverines.

About my family:: I have two amazing children. Sarah-Marie, age ten and Ryan, age eight. Ryan was diagnosed with Duchenne MD in May of 2008. He has a frameshift mutation of exon 38. We live about twenty miles north of Detroit, in Troy, Michigan. I am engaged to a wonderful man, named Dan. We are planning a wedding for late 2014.

Name(s) of child(ren)/individual(s) with Duchenne:: Ryan

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: Troy

State:: Michigan

Ryan and his Big Sister, Sarah-Marie

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Jennifer Collier's Blog

Just another day in Duchenneville.

Posted on December 2, 2008 at 3:30pm 2 Comments 0 Favorites

So, just as you think things are going okay, something happens to throw things off kilter. Just a normal evening turned into one very apologetic big sister and a trip to the emergnecy room ending with a foot in a cast. It seems Ryan and his big sister, Sarah were playing together. They were holding hands and spinning around until Ryan fell and banged his foot on the coffee table. I tried to soothe him, but to no avail. Because Ryan does not speak, we have to use trial and error to figure out… Continue

First MDA Clinic Visit

Posted on October 8, 2008 at 8:40am 2 Comments 0 Favorites

Ryan had his first MDA clinic visit at Duke University Medical Center in Durham, North Carolina on Firday, October 3, 2008. We left St. Augustine at about 3:45 on Thursday afternoon. After a painfully long drive, we arrived at our hotel at about 1 am. The next day, Ryan saw the neurologist at about 8 am, the pulmonologist at 12:30 pm, and the cardiologist/geneticist at 2 pm. Over all, we left Duke at about 4:30 pm. An incredibly LONG day!!! All of Ryan's visits went very well. His lungs and… Continue

Comment Wall (82 comments)

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At 7:50pm on June 27, 2013, Angie Torres said…: Hey! Jen!! How are you. I am fine!! I work in a school in Spring Lake as a DataManager. I took a break from teaching. Aaliyah is doing well she is almost 18, was diagnosed with Asbergers in. 2008. She is homeschooled and ha thriving. How us Ryan??? And Sara? Please call me

At 4:43pm on June 19, 2011, Joanne Ewins said…: Hi Jennifer,

Just wanted to say thanks very much for your kind words and support it really a means alot.

Joanne

At 1:18am on May 23, 2010, Leslie Guzman said…: Hi Jennifer,

I got to this group by coincidence since I happen to be in Disney with no medicine for my son and getting crazy!! I admire you energy and drive. Congratulations!!

Well, you may have seen my post to see if anyone can help me with a solution to get Deflazacort/Calcort borrowed or Purchased. If you know of anyone, please let me know.

God bless your energy, passion and your son.

Leslie
Here is my phone incas eyou hace any ideas. Thx!

At 7:14pm on September 3, 2009, Mandy said…: Hi Jennifer,
I just noticed your license plate. I live in Plantation, Florida and my plate is
"CURE DMD".
Hopefully both our wishes will be a reality - god willing.
Hope your little guy is doing well. Mine is Alex, age 13 and is doing really well.

At 1:14am on August 18, 2009, Teresa Buchanan said…: Love your car tag! What a clever way to raise awareness for DMD!

Teresa

At 1:03pm on August 5, 2009, DanielsDad said…: Talking about being away for a long time...wow...November and now I return a message. We are okay...Daniel is holding his own...we are in Cincinatti at the hospital for our yearly visit...today is day 1 and the testing day. tomorrow is the Drs. visits and friday is a new test to check growth hormone levels...not sure what comes after that test, but interested in finding out. He is on Deflazacort, and im sure thats the big reason why.

How have you and family been? sorry I havent written in so long :0

At 7:44pm on May 10, 2009, jeff said…: Jen
My grandson is 20 months old. I am doing a lot of research on different companies that are working on a cure. Myomics is testing various compounds to come up with a cocktail that will strengthen muscles to give us all more time.
JEff

At 7:33pm on April 19, 2009, Janine said…: Jennifer,

Just wondered if you guys went ahead with a muscle biopsy or not?

Janine

At 10:26am on April 5, 2009, Jill Keenan said…: Hey Jennifer! Thanks for the shout out! It has been a REALLY long time since I have been on here!! Things are going good for us. We went to see Dr. Wong back in February and Wyatt is still doing ok-so that was good to hear!! How is Ryan doing? And you? I imagine the weather in Florida is great about now! It is pretty good in Houston! Soooo glad I do not live where it gets and stays cold ALL winter! Y'all take care!

Jill ;)

At 12:12pm on March 24, 2009, Mark Dickerson said…: Hi Jennifer,

How interesting that you used to live in Michigan and now teach school in Jacksonville. My wife, Danelle, and I lived on the north side of Jacksonville from '96-'99 and have now moved back up to Michigan. The warm weather in FL sure is nice!

Thanks for welcoming me to PPMD. Danelle is on every day and keeps me udated, but there are times when I just want to keep up on stuff myself:) We are starting steroids next week because we have seen such a dramatic decrease in Matt's strength over the past few months. We are praying that this will give him extended strength and encouragement and keep him from falling as much.

God bless, and keep praying for a cure!

Mark