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Jennifer
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  • Canada
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Jennifer's Friends

  • Geraldine Coolidge
  • Anup Kalra
  • Andrea Cleary
  • Vickie Bielefeldt
  • Angela Bourgeois
  • Evan's Mom
  • Jo-Anne
  • Colin McKenzie
  • Debra Chiabai

Jennifer's Groups

Jennifer's Discussions

Chicken Pox?

Started this discussion. Last reply by Janine Jul 14, 2013. 2 Replies

Youtube

Started Oct 11, 2011 0 Replies

GSK vs AviBiopharma

Started this discussion. Last reply by Ofelia Marin Jul 26, 2011. 3 Replies

 

Jennifer's Page

Latest Activity

Jennifer commented on Angela Bourgeois's group Atlantic Canada Families
"Let me know how it goes, perhaps we will try on PEI."
Jan 14, 2014
Jennifer commented on Angela Bourgeois's group Atlantic Canada Families
"I believe another Canadian was successful in getting his province to cover deflazacort. Perhaps you could get in touch with him, I believe his name is Andrew Kerr."
Jan 14, 2014
Jennifer posted a discussion

Chicken Pox?

Three weeks ago my son developed a rash on one side of his back and we were told it was chicken pox.  The spots were not itchy and did not blister or follow the typical course for chicken pox.  He was started immediately on an anti viral for 5 days because he has been on Deflazacort for 5 years now.  He is in the GSK trial and he was given his injection on his bottom that same day, two days later we had to take him to the Dr and it turned out he had a bacterial infection at the site of his…See More
Jul 14, 2013
2 Comments
Jennifer replied to Jennifer's discussion Age for wheelchair
"Vickie, We did get him a manual wheelchair for school. We considered the scooter, but he is not very good with steering. Still can't steer a bike or a trike. He doesn't use the wheelchair very much, only for the longer walks at school. He…"
Mar 1, 2012
Vickie Bielefeldt replied to Jennifer's discussion Age for wheelchair
"Jennifer, Have you ever thought of looking into getting him a motorized scooter?  I have a little boy who is now 10 but a few years ago we had gotten him the scooter to help with the longer distances due to him tiring so easily.  At his…"
Mar 1, 2012
Jessica Argueta Tucker replied to Jennifer's discussion Age for wheelchair
"You know your son best, if it looks like he is too tired then yes get him a wheelchair for occasional use. The dr seems very insensitive, maybe find a new one."
Feb 22, 2012
Claire Diemler replied to Jennifer's discussion Age for wheelchair
"I would get a new neurologist."
Feb 21, 2012
Jennifer and Geraldine Coolidge are now friends
Jan 27, 2012

Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Cornwall, PEI

Comment Wall (2 comments)

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At 7:36am on July 20, 2011, Bryan & Cari Sweet said…

Hi Jennifer,

 

Austin just started seeing Dr. Dooley, he was just diagnosed in April.

 

 

At 9:40pm on August 24, 2008, Evan's Mom said…
Hi Jennifer:
Welcome, fellow Maritimer. I hope you find this site as helpful as I do.
Julia
 
 
 

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