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Jenna Shaw 39, Female Valparaiso,IN United States: Favorite

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The fight of his life.

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About me:: Hello, My name is Jenna. I have two sons Shane 11 and Jacob 9 years old. I married my best friend Tony. He is the best thing to ever happen to us. Right before we got married in 2006 we found out that Jacob has DMD. From that day, my world was turned up side down. It makes you open your eyes. For a long time, I didnt want to face it. His health stayed about the same for 2 years and I thought maybe the doctors were wrong.
That wasnt the case! He is know longer walking now. We just take it one day at a time. I treasure every minute I have with him.
Lucky to be his MOM! Jenna

About my family:: I have 2 sons. Shane 11 years old and Jacob who is 9years old.

Name(s) of child(ren)/individual(s) with Duchenne:: Jacob Myers

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: Valparaiso,IN

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Benefit

Posted on August 18, 2009 at 5:32pm 1 Comment 0 Favorites

My son Jacob is 9 years old (has DMD) and just stopped walking 3 weeks ago. My friends and I are trying to put together a Benefit for him. If anyone has any advice for me, please help? Thanks Jenna Shaw

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At 8:10pm on March 10, 2011, kimmy watters said…: hey jenna how are you your son is just so cute how are you coping today, i to have walking issue , but i am doing the seattle half marathon this june for run for our son we will have cure before you know it. kimmy watters

At 8:17pm on January 21, 2009, Amanda Trosper said…: It was so awesome alot of walking. We didn't get to see the whole Village though. It seem's like a dream it doesn't seem like it happened. That was the first vacation we ever took so maybe that's why.

At 9:12pm on January 6, 2009, Amanda Trosper said…: Hi Jenna do you guys stay at Give Kid's The World. I signed up Damien for make a wish and we go to Walt disney and Give Kid's The World on Saturday January 10th. If you did it looked like your son had lot's of fun. I also wanted to say I wish the best for your family. So is it just your one boy that has DMD they say my youngest son doesn't show any of the signs. Well have a good evening
Amanda

At 9:33pm on December 19, 2008, Dave Jorgensen said…: Thanks Jenna. I've been involved with ppmd for quite a while, but I love the site.

Dave

At 2:38am on November 20, 2008, Marc André Wyss said…: Hi Jenna

Thanks for posting on my comment wall. I was a bit surprised, because I just registered to this community. I guess I'm the first one from Switzerland. :-)

I wish your family the best. Hope against hope. I saw a lot of surprising things in the past 9 years in "my" summer and computer camps. Overall it looks like the children with DMD give me more back than I give them.

At 9:18pm on November 19, 2008, Marian Lamberson said…: Hi there,
Thanks for adding me as a friend. You and I also have alot in common, unfortunately both of my boys are DMD. Been a pretty tough year.
Glad to see you here..this is definetly the place to be.
Good luck and God Bless ya Dear!!!

At 10:36am on October 22, 2008, Hunter's Hope said…: You and I seem to have a lot in common. I am 27, recently remarried, and have 2 sons from a previous marriage. My eldest son has DMD. I wish you all the luck in the world, you have a gorgeous family. Wasn't GKTW amazing??!!