Jeni Ward
  • Female
  • Lynnwood, WA
  • United States
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Profile Information

About me:
I live with my family in Lynnwood, WA. I teach part-time ESL in a Mukilteo middle school.
Our 6-year old son Colin was diagnosed with DMD in August 2009. He has a deletion of exon 7.
About my family:
My husband works for Starbucks and I teach 5 hours per day.
Our 9-year old daughter Bailey will be a 4th grader this year.
Colin will be starting first grade this year! We like the outdoors- camping, fishing, love to travel, love the UW Huskies!
Name(s) of child(ren)/individual(s) with Duchenne:
Colin
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Lynnwood, WA

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Comment Wall (37 comments)

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At 1:08pm on September 18, 2011, Cheryl Hartwig said…
Call me 425-265-9939
At 10:40pm on September 17, 2011, Cheryl Hartwig said…
Okay, I just saw the weather....  Is there a back up plan if it is raining?  I live close we can go to my home or yours.  Anything you want.  We have a two story house and the bathroom is upstairs.  I know, it is not a good home for Jacob and we are looking to buy a new home very soon, but I thought you should know.
At 2:42pm on September 16, 2011, Cheryl Hartwig said…
That is great!  I will have Jeremy also.  He looks out for Jacob and is very helpful.  See you Sunday.
At 12:26pm on September 16, 2011, Cheryl Hartwig said…
I live in South Everett near the mall.  I thought of a great place....  I will meet you and Colin at 1:00 pm this Sunday at Silver Lake park.  They have swings and stuff.  Hope to see you there.
At 10:49pm on September 15, 2011, Cheryl Hartwig said…

Jeni,

Does Colin take Idebenone?  Where do you get it and how much does he get if you do?  I have been ready these post and I think I am behind in his treatment.... Has Colin shown sign of muscle challages or is he improving and maintaining?

At 10:24pm on September 15, 2011, Cheryl Hartwig said…
What park does Colin feel comfortable in?  We don't really have a great park around here.
At 2:31pm on September 15, 2011, Cheryl Hartwig said…
I told Jacob about Colin and he was really excited about making a new friend.  Do you have an hour sometime on Sunday to meet us at a park so the boys can swing together?
At 3:46pm on September 14, 2011, Cheryl Hartwig said…
Sure, I can meet you for lunch.  I can take it at anytime.  I would have to be around the 128th street area though.  Let me know what sounds good for your schedule.
At 2:22pm on September 14, 2011, Cheryl Hartwig said…
No worries, some other time then.  Have a nice day.
At 2:04pm on September 14, 2011, Cheryl Hartwig said…

Jeni ~

Can you go to my company's website www.streamkeeper.org and go to classes?  We are having a presentation by Jeff Guidry and his Eagle named Freedom.  Has Colin or your family ever seen a bald eagle 5 feet away from them?  You are more then welcome.  I will be working but my family will be there.  Freedom loves the flash of a camera.  Anyway it is this Saturday at 11 a.m....  Admission for the four of you will already be paid for (I work here).  Anyway hope to see you Saturday.

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