PPMD Community

Jeni Ward Female Lynnwood, WA United States: Favorite

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About me:: I live with my family in Lynnwood, WA. I teach part-time ESL in a Mukilteo middle school.
Our 6-year old son Colin was diagnosed with DMD in August 2009. He has a deletion of exon 7.

About my family:: My husband works for Starbucks and I teach 5 hours per day.
Our 9-year old daughter Bailey will be a 4th grader this year.
Colin will be starting first grade this year! We like the outdoors- camping, fishing, love to travel, love the UW Huskies!

At 10:40pm on September 17, 2011, Cheryl Hartwig said…: Okay, I just saw the weather.... Is there a back up plan if it is raining? I live close we can go to my home or yours. Anything you want. We have a two story house and the bathroom is upstairs. I know, it is not a good home for Jacob and we are looking to buy a new home very soon, but I thought you should know.

At 2:42pm on September 16, 2011, Cheryl Hartwig said…: That is great! I will have Jeremy also. He looks out for Jacob and is very helpful. See you Sunday.

At 12:26pm on September 16, 2011, Cheryl Hartwig said…: I live in South Everett near the mall. I thought of a great place.... I will meet you and Colin at 1:00 pm this Sunday at Silver Lake park. They have swings and stuff. Hope to see you there.

At 10:49pm on September 15, 2011, Cheryl Hartwig said…: Jeni,

Does Colin take Idebenone? Where do you get it and how much does he get if you do? I have been ready these post and I think I am behind in his treatment.... Has Colin shown sign of muscle challages or is he improving and maintaining?

At 10:24pm on September 15, 2011, Cheryl Hartwig said…: What park does Colin feel comfortable in? We don't really have a great park around here.

At 2:31pm on September 15, 2011, Cheryl Hartwig said…: I told Jacob about Colin and he was really excited about making a new friend. Do you have an hour sometime on Sunday to meet us at a park so the boys can swing together?

At 3:46pm on September 14, 2011, Cheryl Hartwig said…: Sure, I can meet you for lunch. I can take it at anytime. I would have to be around the 128th street area though. Let me know what sounds good for your schedule.

At 2:22pm on September 14, 2011, Cheryl Hartwig said…: No worries, some other time then. Have a nice day.

At 2:04pm on September 14, 2011, Cheryl Hartwig said…: Jeni ~

Can you go to my company's website www.streamkeeper.org and go to classes? We are having a presentation by Jeff Guidry and his Eagle named Freedom. Has Colin or your family ever seen a bald eagle 5 feet away from them? You are more then welcome. I will be working but my family will be there. Freedom loves the flash of a camera. Anyway it is this Saturday at 11 a.m.... Admission for the four of you will already be paid for (I work here). Anyway hope to see you Saturday.