Jeff Harvey
  • 41, Male
  • Norwood, MA
  • United States
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  • Jane Foley Woelfel
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Jeff Harvey's Page

Profile Information

About me:
I am the father of a son who has just been diagnosed with Duchenne's Muscular Dystrophy. I work as an executive search consultant.
About my family:
I have a beautiful wife,Elizabeth who is 32 and a daughter, Caroline who is 5. My son's name is J.B. and he is 3 years old. We live in Norwood, MA.
Name(s) of child(ren)/individual(s) with Duchenne:
J.B. Harvey III
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
Norwood, MA

Comment Wall (17 comments)

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At 2:10pm on April 7, 2011, Kira Mullaly said…
Jeff,
I saw your wife's interview on Fox 25. Wonderful job on getting DMD in the public eye.
Kira
At 3:09pm on April 29, 2009, cindy q said…
Please note the location for the MGH DMD Parent round table on Saturday, May 2 is at the Holiday Inn in Rockland, MA.
At 2:57pm on April 29, 2009, cindy q said…
Hello Jeff,
Glad you found this forum. You will learn alot here. I also live in MA, in Mansfield. My son with DMD is 7. He was diagnosed at age 5. If I can help in any way, please let me know. I am currently in the process of getting some of the younger boys/families together in our area for a play/social time. If you are interested, please let me know. I look forward to meeting you at the MGH Round Table on Saturday.
Cindy Quitzau
At 9:19am on February 3, 2009, Eileen DeLong said…
Hi Jeff,
I am glad you have found us. Let me know if I can help in anyway.
Eileen
At 11:58am on January 15, 2009, Paul Johnson said…
Hello Jeff... Welcome to the site, unfortunately. I grew up in Lynn, MA and my parents still live there. I noticed one of JB's grandparents live in Saugus... (Maybe you can keep my parents informed of any DMD related events happening on the North Shore... ;-)
We have two sons 5 and 2 who were diagnosed with Duchenne in June 07. Our oldest, Elliott just started in the PTC124 2B trial...
At 7:29am on January 15, 2009, Monica said…
This seems like a great site Jeff. And it looks like you've already made some great connections!
At 4:35pm on January 14, 2009, Jane Foley Woelfel said…
I truly haven't had a minute to sit and read it, but it sounds fascinating
At 12:28pm on January 14, 2009, Kathy said…
Wow! Our kids are on the same path aren't they! Keelan has early intervention for late motor milestones and 'food aversion'. He would gag and projectile vomit on things like a Rice Krispy. He's ok now, but from 6-14 months, it was really bad. Dr. Kang works under Dr. Darras and is very, very nice. We're still going to go to Mass Gen. if possible too. Already having problems with our insurance. Go figure!
At 12:19pm on January 14, 2009, Jane Foley Woelfel said…
I'm glad you agree! And you're welcome!
At 11:44am on January 14, 2009, Michelle said…
BTW, my son had some swallowing issues as i recall, around 8-18 months. Particularly meats. We kept him to pasta, overcooked veggies and mostly food-processed meat mixed into sauces during that time. He got past it, but still sometimes doesn't chew thouroughly enuf (i think b/c his jaw gets tired) and then gags.
 
 
 

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