The trip to Six Flags was a rollar coaster of highs and lows indeed. He was elated to go. We made a pact to try the rides he felt comfortable with doing. Ones that would not load his spine to worsen compression fractures from the osteopenia and osteoporosis. We thought we had a plan. Lot's of big "football" type boys and ride workers helped me load him into some rides.
We were into about the seventh ride when disaster struck. When we were lifting him into the Scrambler, the…Continue
One of the things that some writer's struggle with is writer's block. I guess, maybe I am one of the lucky ones, but for me that just doesn't seem to be an issue. I believe that some writer's block is caused by pressure. When you feel under pressure or a dealine to produce something, anxiety is produced. Anxiety can make the brain hyperactive, and synapse connections are definitely affected. In fact, sometimes anxiety is so powerful, it blocks some connections…Continue
Hello everyone! I wish I could say that I had written a wonderful book like Mary Lou Weisman's Intensive Care. However I did right a good one! Flying Solo is the first in a series of books which will wind up telling the story of my own journey coping and battling Duchenne's.
This first part of the story however, FLYING SOLO, is about a very courgeous, independent woman, Nora. Nora is a 1960s suburban catholic housewife from New Orleans. On a whim, she learns to…Continue