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Jay Griffin
- Male
- Concord, NC
- United States
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Jay Griffin's Groups
Jay Griffin's Discussions
Athletics
Started Mar 14, 2016 0 Replies 0 Favorites
My son is six and he is now playing baseball. What are your thoughts of our kids playing baseball? On one hand I want him to be active and play. The other concern is the physical part. I.e. swinging…Continue
VBP15 Dissociative Steroid Drug
Started this discussion. Last reply by Jay Griffin Jan 14, 2016. 4 Replies 0 Favorites
Are there any families taking this? If so, please provide us your feedback
Variety of emotions
Started this discussion. Last reply by Andrea Cleary Dec 18, 2015. 1 Reply 0 Favorites
My son was recently diagnosed with DMD. Had a conversation with a genetic counselor. Wanted to get more specific info regarding his test results. I was hopeful a little bit because there was a…Continue
Jay Griffin's Page
Profile Information
- About me:
- Live in Concord, NC
- About my family:
- Wife of 16 yrs and we have two boys ages 6 and 4
- Name(s) of child(ren)/individual(s) with Duchenne:
- Franklin
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- concord
- State:
- North Carolina
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I dont undestand this site. If you have opportunity, I could write your email. My email
my-science@ukr.net. I wiil be wait for your answer.
regard
Margarita
Hello! How are you? We are well. My son goes to school in 5 grade. And are you?
Jay sorry we didn't connect last week. If you're still interested in giving Shawn or I a call just let us know.
Andrea
Jay yes I'll be around 'til 3:30ish our time...just so happens my son and husband are at Cincinnati Children's Hospital this week. Today (Tuesday) is the very best day for us to talk as I'll be doing a lot of conference calls between the hospital/myself/my husband the rest of the week. My phone number is five two zero, 5 1 four, 7 nine 6 five.
I saw some of your posts, and I so understand where you are. This is a strange journey we are all on. Your emotions change from moment to moment. There is so much to take in.
We are very happy with the care we have gotten at Duke. Dr Smith (neuro) is great, as is the rest of the doctors and nurses we have seen. I'll send you a friend add on here and then we can message back and forth that way.
Also, here is a link to my Facebook blog page. I don't update it as much as I thought I would, but I try to spit every few months. https://www.facebook.com/BlogThisIsLife/