Jason Hubal
  • Male
  • Deer Park, WA
  • United States
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MyMDA

Started Jan 29, 2011 0 Replies

Another helpful online community for all types of MD called MyMDA:…Continue

 

Jason Hubal's Page

Profile Information

About me:
I have duchenne and God has blessed me with long life - I can do nothing without Him. I'm a writer - an author of 3 novels and dozens of poems.
About my family:
I've been blessed with a wonderful, loving mom and sister. My dear dad passed from cancer about 5 years ago. I also have a cousin with duchenne.
City:
Deer Park, Wa

Jason Hubal's Blog

Vent Part VIII

Posted on January 31, 2011 at 6:58pm 0 Comments

I thought “Not again” two nights ago. My new 950 vent started giving me extra breath, not accelerated like the Trilogy had been doing, but enough to keep me awake, only when I was on my right side. Most likely because of the way the tubing hung at the bed’s side. Two skinny tube sensors, which helps the vent adjust to the air leak around my trach. My respiratory therapist said if these sensors are upside-down it would cause the machine to think I needed a breath. There are issues being…

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Vent Part VII

Posted on January 29, 2011 at 6:18pm 0 Comments

Another unwanted episode of ... "As the Vent Breathes"

I started having a problem last week with my Trilogy 100 vent. My doc (pulmologist) wanted to get to the bottom of it gave me 5mg of Ambien.

My options 1) get used to the Trilogy 2) try an LTV 950– already tried the LTV 800 and was used to it 3) put in cuffed trach (requires minor surgery – this I surely want to avoid). It’s been quite a challenge finding a new vent. The LP10 had been such a reliable machine for years.…

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Vent Part VI

Posted on December 13, 2010 at 1:00pm 0 Comments

Norco was the respiratory care supplier my nursing agency recommended. A call was made to an RT at Norco by the name of Rebecca and she called back. An appointment was made but being canceled due to inclement weather it was rescheduled a week on 12/1/10. Rebecca came with a Trilogy 100, a compact, blue box for me to try. First she went through some paperwork which involved my medical supplies. Then tubing was hooked up and Rebecca dialed in similar vent settings as my LP10. The sensitivity…

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Vent Part V

Posted on December 12, 2010 at 6:56pm 0 Comments

Come to find out it wasn’t the insurance dictating what vent I’d get, but my vent equipment supplier, Lincare. Laura had informed us in October that Lincare getting out of the vent business and so they were not taken on new vent patients, nor were they not purchasing new vents. Thus whatever vents they have around were the only ones to choose from. So they had only the LTV 800 available. Since I wasn’t comfortable with the LTV and mom saw my frustration, along with Laura, it was decided to…

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At 6:46pm on January 29, 2011, Joshua's mom said…
Hi Jason,

We rented bikes at the Park for a day. Here is the link if you'd like to see them. We can also buy them when they are retired. We are truly thinking of doing that! It was definitely a memorable day. :D

http://www.bee2getherbikes.com/assiniboine/bikes.html
 
 
 

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