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Jason Darienzo
  • 37, Male
  • Brooklyn, NY
  • United States
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Latest Activity

Jason Darienzo commented on PPMD's blog post Understanding Health Insurance Options: A Guide for People Living with Duchenne Muscular Dystrophy and their Caregivers
"Disabled children of Medicare recipients are eligible for Medicare aswell as Medicaid"
Mar 29
Jason Darienzo posted a discussion
Feb 25
Jason Darienzo replied to Sanja Kogelnik's discussion Statins and muscels
"A new therapeutic effect of simvastatin revealed by functional improvement in muscular…"
Oct 17, 2016
Jason Darienzo replied to Michael Bazant's discussion Stem cells not a sollution?
"Michael the article you posted does come off in a negative light for stem cell treatments by themselves. However, DMD will need to be treated with a combination of drugs and therapies. The article talks about muscle stem cells…"
Oct 11, 2016
Shelly favorited Jason Darienzo's discussion Sarepta Therapeutics shares jump on news of critic’s departure from FDA
Sep 21, 2016
Jason Darienzo posted a discussion

The agency approves a drug after an ugly bureaucratic brawl

The Wall Street Journal / OpinionThe Boys Who Beat the FDAThe agency approves a drug after an ugly bureaucratic brawl. Sept. 19, 2016Miracles happen. The Food and Drug Administration on Monday approved a drug for muscular dystrophy after months of delay and bureaucratic infighting. This is a triumph for scientific innovation, and for young men who will live better and more independently—if the bureaucracy doesn’t strike back.FDA announced accelerated approval for eteplirsen by…See More
Sep 19, 2016
David replied to Jason Darienzo's discussion Sarepta Therapeutics shares jump on news of critic’s departure from FDA
"Three cheers for Janet Woodcock! She gets rid of Farkas and just days later we have accelerated approval!!!!"
Sep 19, 2016
Tiffany Rizzo replied to Jason Darienzo's discussion Sarepta Therapeutics shares jump on news of critic’s departure from FDA
"It says he left to work for  Paraxel a pharmaceutical company that specializes in clinical trials. I wonder if they will be working on a treatment for DMD.  Hmm."
Sep 15, 2016
Michael Bazant favorited Jason Darienzo's discussion Sarepta Therapeutics shares jump on news of critic’s departure from FDA
Sep 15, 2016
Michael Bazant replied to Jason Darienzo's discussion Sarepta Therapeutics shares jump on news of critic’s departure from FDA
"Thank you for sharing this."
Sep 15, 2016
David replied to Jason Darienzo's discussion Sarepta Therapeutics shares jump on news of critic’s departure from FDA
"Good riddance! Hopefully he will stay away from all medicine for good. A disgrace to the profession!"
Sep 14, 2016
Jason Darienzo posted a discussion

Sarepta Therapeutics shares jump on news of critic’s departure from FDA

"Arguably the most oppositional team leader of the review board to the approval of Duchenne Muscular Dystrophy (DMD)-treating pipeline drug eteplirsen, has officially left the FDA."http://www.marketwatch.com/story/sarepta-therapeutics-shares-jump-on-news-of-critics-departure-from-fda-2016-09-14…See More
Sep 14, 2016
Michael Bazant favorited Jason Darienzo's discussion Heart of Bureaucratic Darkness
Sep 12, 2016
Shelly favorited Jason Darienzo's discussion Heart of Bureaucratic Darkness
Aug 27, 2016
Jason Darienzo posted a discussion

Heart of Bureaucratic Darkness

Heart of Bureaucratic DarknessWhy won’t the FDA make a decision on a muscular dystrophy drug?The Wall Street JournalOpinionAug. 9, 2016 7:10 p.m. ETGovernment ineptitude is usually a punch line, but the dark reality is that bureaucratic malfeasance can carry a body count. The Food and Drug Administration is months late deciding whether to approve a drug for muscular dystrophy, and…See More
Aug 25, 2016
deweer replied to Jason Darienzo's discussion Targeting β1-integrin signaling enhances regeneration in aged and dystrophic muscle in mice
"on s"en fout pour le moment "integrin" dans 10 ans peut être il y a autre chose SMTC1100??????????????????? le temps presse, il y a urgence; priorité à SMTC c'est du British du prof Davies, en avant toute; pas…"
Jul 9, 2016

Profile Information

About me:
I am 37 years old with DMD
About my family:
My brother Richard is 38 with DMD
Name(s) of child(ren)/individual(s) with Duchenne:
Jason Darienzo
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
City:
Brooklyn
State:
New York

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At 1:12pm on October 22, 2010, Patti Frank said…
Hey Jason, You're 30 == great. How are you doin? kevin's counsellor at MDA camp this summer (first time) is from Brooklyn too -- Angelo -- great kid. Thanks for your info. about the wc. Hope to hear back.

Patti in NJ
 
 
 

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