Hi, Janine! Thanks for your comment and clarification of the Medicaid and SSI situation. I check out the PPMD site once every couple of months or so. Our grandson is still ambulatory at this point, for which we are very grateful. But we feel so helpless and I had hoped maybe we could at least get some money for him to put away for future needs. Thanks again for taking time to respond!
Hello, Janine, how are you? I saw you requested me as a friend? I am sure there is a reason for it. Can you tell me a little bit more about yourself? I am new here. My son is 2 and he just got diagnosed with DMD, so we are just starting our journey. I see your boys are older. I will be happy to chat with you sometimes.