Janelle, thanks for writing! Yes, we're an adoptive family too. Our kids are from Korea so it's a closed adoption. My son is a really sweet guy and I bet he'd really like to meet your son. It's funny because I met with Jeni Ward and her son doesn't have any cognitive delays at all so even though he's only 1 year older than Jason, it was like 4 year difference, and although Colin is the nicest little kid (Jeni's boy), he didn't really connect with my son. I decided early on not to fret about the academics. I am worried about him having friends as the DMD progresses and I'm thinking about having him stay over at MDA camp this summer (we went to VIP day last year). My son thought VIP day was great but I just can't imagine him doing a week away on his own.
Well now I am rambling on! I try to keep a positive outlook as much as possible with the DMD and just live day to day. Sometimes I wonder if I'm in denial or maybe just in shock but I just keep my hopes up that my son -- our sons -- will have happy lives and that the research will bring about treatments or even a cure. I'd better stop now or I never will.
Hi, Janelle! Thanks for friending me! My son's 6 and in developmental kindergarten. In his case, the DMD has included cognitive delays too. Is Brayden older than Micah? My son, Jason, has a little sister who's 3 1/2. I hope we get to meet sometime! We are actually going to do the MDA Muscle Walk on March 3rd. If you are going, let me know and we could meet. :-) --Ruth, Bothell WA