Started this discussion. Last reply by Kari Aug 11, 2008. 1 Reply 0 Favorites
Started this discussion. Last reply by Kelly Bruhl Aug 23, 2008. 24 Replies 0 Favorites
© 2023 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service
Comment Wall (5 comments)
You need to be a member of PPMD Community to add comments!
Join PPMD Community
Loved the boys in drag btw, so cute.
Samuel was delayed on all his milestones & when I compared him with other children his age I felt his gross motor skills were compromised. I mentioned this to his kindy teacher & in the third term of that year she recommended that we have him assessed by a physio. We went to our GP who advised us to begin by seeing a paediatrician. He gave us a referral to a physio but also wanted us to have a blood test done to "rule out a couple of other things" but didn't indicate anything more than that. Two days later he wanted to see us both about the blood test results at which point I KNEW it was something big. That moment is burned into my memory FOREVER as I am sure is that moment for you. Samuel had a muscle biopsy 4 months later which found that he has traces of dystrophin which is a plus but also confirmed the diagnosis of DMD. He also went onto prednisone at that time so has been on them for 3 years now ... his current daily dose is 3mls. So far he is doing well & his condition isn't glaringly obvious yet to those who don't know but we can certainly see the deterioration over the past 3 years. I would love to hear more about where you are at in your journey ... what you are thinking, how you are feeling, how is your husband with it etc. Having other people to share with is a real blessing & a lightening of one's burden. This website is invaluable for that !
Take care,
Kelly
In health and happiness,
Rebecca
--Samantha