"Hi Jamie. We had some contact way back when. How are you doing? How is Gabriel?"
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Jamie M.
- Female
- Wallaceburg, Ontario
- Canada
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Latest Activity
Jamie M. joined Tanya Fleming's group
Single and dealing with DMD
This group is for anyone that is or about to be single, and their families with DMD/BMD.
Jamie M. joined Kari's group
Family and Friends Who Support Us With DMD/BMD
A place for family and friends to discuss issues and learn more about what we face day to day
Profile Information
- About me:
- I have a son diagnosed with DMD at age 5 1/2 who is now 12. He is an amazing child, he is truly my inspiration.
- About my family:
- My family is very loving and supportive of my son. We are all there for my son and each other. I thank God that none of us are taking this journey alone, especially my son.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Gabriel
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City and State:
- Wallaceburg, Ontario
- Country:
- Canada
Comment Wall (9 comments)
- At 9:39pm on January 20, 2012,
Angie Evans said… Hi Jamie. We had some contact way back when. How are you doing? How is Gabriel?
- At 7:17pm on March 31, 2010,
Tina & Darren Harris said… - hay there Tina Harris is now on face book
this is her email dt.harris@bigpond.com
hope to see you there
- At 3:47pm on January 14, 2010, Donna Gluck said…
- Hi Jamie,
My daughter tells me the same thing about her name! Check out our web site
dgcounselinginc.com
Being raised with two younger brothers that had DMD was difficult as you can imagine. I had a unique role. From sibling, daughter and many times primary care giver; Billy and Steven had few people to talk to. Most were uncomfortable and others felt denial was a viable option. My brothers and I had many heart to hearts. I learned so much about their experience & was taught about life.I believe many of the boys are wise beyond their years. I want to educate the general population.I can be much more effective if I have published work. Many doors open for a dr. degree. When my youngest moved out I decided to go back to school and get a doctorate degree. What else could I do. So, my focus has always been giving DMD a personal voice. There are those that want to learn and I want to teach! I need 3 more boys & moms to complete my project. Having a very hard time locating families in Illinois. Good to talk. Donna G
- At 10:06am on January 14, 2010, Angie Evans said…
- HI Jamie,
Sean's swim with the dolphins was AMAZING!! The whole week in Hawaii was such a great time - such wonderful memories for all of us! Thanks for asking! I will post some dolphin pictures soon. Hats off to Children's Wish Foundation - what an amazing charity!
- At 5:41pm on January 13, 2010, Donna Gluck said…
- Hi,
Jamie, just wanted to mention; I love your name and the spelling. My first born is Jamie!
Donna G
- At 10:55pm on December 22, 2009, Tina & Darren Harris said…
- Hi Jamie, we hope you have a Happy christmas and all the best in 2010 to your family.
From
Tina,Darren,Tyran,Marshall & Hannah-Lee Harris.
- At 1:01am on December 21, 2009, Angie Evans said…
- Hi Jamie! Thanks for the note. I do know Chatham as I have a friend who use to work in Woodstock. I see your son is 12 years old - Sean is turning 10 on Tuesday and his brother Colin is turning 13. We will be swimming with dolphins that day as we are currently in Hawaii for Sean's "Make a Wish"!! He is crazy about animals so his wish was to swim with dolphins and we are doing that here in Hawaii! We are having such a wonderful time. I hope Gabriel has taken advantage of this great charity and hasw made a wish! Nice to meet you! Season's Greetings!!
- At 11:57pm on December 18, 2009, Tina & Darren Harris said…
- Thank you for your kind words. It tacks some time to get to know how to set out your page.
go to the top of you page next to ( your page ) is main click onto that and pick customize your page. you will have fun doing that. I did lol...
12 hay. Not that much older then Tyran. This DMD is so bad do you have any outer children ?
Its so hard to try to help the outer two kids understand what Tyran is going through. so I do a bit of writhing . I have writhen a set of kids book's called Rex & Tim Explour. there is a set of 5 book's . 1 to 4 is a story Tim has DMD and Rex is the X genne bear and Rex helps Tim. Book 5 is a Q/A for mum's.dad's and cares. I am trying to get them out into the book shop's but I need $ 4000. just to get them published. thats a lot of saving.
hope to chat to you soon be good.
- At 12:06am on December 17, 2009, Tina & Darren Harris said…
- hi jamie welcome from the harris famiy
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Events
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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