My daughter tells me the same thing about her name! Check out our web site
Being raised with two younger brothers that had DMD was difficult as you can imagine. I had a unique role. From sibling, daughter and many times primary care giver; Billy and Steven had few people to talk to. Most were uncomfortable and others felt denial was a viable option. My brothers and I had many heart to hearts. I learned so much about their experience & was taught about life.I believe many of the boys are wise beyond their years. I want to educate the general population.I can be much more effective if I have published work. Many doors open for a dr. degree. When my youngest moved out I decided to go back to school and get a doctorate degree. What else could I do. So, my focus has always been giving DMD a personal voice. There are those that want to learn and I want to teach! I need 3 more boys & moms to complete my project. Having a very hard time locating families in Illinois. Good to talk. Donna G
Thank you for your kind words. It tacks some time to get to know how to set out your page.
go to the top of you page next to ( your page ) is main click onto that and pick customize your page. you will have fun doing that. I did lol...
12 hay. Not that much older then Tyran. This DMD is so bad do you have any outer children ?
Its so hard to try to help the outer two kids understand what Tyran is going through. so I do a bit of writhing . I have writhen a set of kids book's called Rex & Tim Explour. there is a set of 5 book's . 1 to 4 is a story Tim has DMD and Rex is the X genne bear and Rex helps Tim. Book 5 is a Q/A for mum's.dad's and cares. I am trying to get them out into the book shop's but I need $ 4000. just to get them published. thats a lot of saving.