My daughter tells me the same thing about her name! Check out our web site
Being raised with two younger brothers that had DMD was difficult as you can imagine. I had a unique role. From sibling, daughter and many times primary care giver; Billy and Steven had few people to talk to. Most were uncomfortable and others felt denial was a viable option. My brothers and I had many heart to hearts. I learned so much about their experience & was taught about life.I believe many of the boys are wise beyond their years. I want to educate the general population.I can be much more effective if I have published work. Many doors open for a dr. degree. When my youngest moved out I decided to go back to school and get a doctorate degree. What else could I do. So, my focus has always been giving DMD a personal voice. There are those that want to learn and I want to teach! I need 3 more boys & moms to complete my project. Having a very hard time locating families in Illinois. Good to talk. Donna G
Sean's swim with the dolphins was AMAZING!! The whole week in Hawaii was such a great time - such wonderful memories for all of us! Thanks for asking! I will post some dolphin pictures soon. Hats off to Children's Wish Foundation - what an amazing charity!
Hi Jamie! Thanks for the note. I do know Chatham as I have a friend who use to work in Woodstock. I see your son is 12 years old - Sean is turning 10 on Tuesday and his brother Colin is turning 13. We will be swimming with dolphins that day as we are currently in Hawaii for Sean's "Make a Wish"!! He is crazy about animals so his wish was to swim with dolphins and we are doing that here in Hawaii! We are having such a wonderful time. I hope Gabriel has taken advantage of this great charity and hasw made a wish! Nice to meet you! Season's Greetings!!
Thank you for your kind words. It tacks some time to get to know how to set out your page.
go to the top of you page next to ( your page ) is main click onto that and pick customize your page. you will have fun doing that. I did lol...
12 hay. Not that much older then Tyran. This DMD is so bad do you have any outer children ?
Its so hard to try to help the outer two kids understand what Tyran is going through. so I do a bit of writhing . I have writhen a set of kids book's called Rex & Tim Explour. there is a set of 5 book's . 1 to 4 is a story Tim has DMD and Rex is the X genne bear and Rex helps Tim. Book 5 is a Q/A for mum's.dad's and cares. I am trying to get them out into the book shop's but I need $ 4000. just to get them published. thats a lot of saving.