James
  • Male
  • North
  • Ireland
Share on Facebook
Share
  • Featured Blog
  • Discussions (12)
  • Events
  • Groups
  • Photos
  • Photo Albums

James's Friends

  • Jason Darienzo

James's Discussions

exons 3 - 7

Started this discussion. Last reply by Eileen DeLong Sep 13. 26 Replies

HiWe have just recently got Johns diagnosis as "deletions in exons 3 - 7".  Otherwise we know very little.  John is 10 and still quite mobile although geting worse.  Any thoughts or information that…Continue

 

James's Page

Latest Activity

Eileen DeLong replied to James's discussion exons 3 - 7
"Hi, Jared is now 19 and Calvin is 22 both still walking. Seeing Dr. Wong in November. So lucky she moved closer to us since we had to stop seeing her due to insurance change. They both have problem with anxiety but doing well mostly."
Sep 13
Kevin replied to James's discussion exons 3 - 7
"Hi All, My son was diagnosed with exons 3-7 deletion last year at age 8.  He has muscle weakness and ADHD, but otherwise doing pretty well. This thread has been very helpful for me understanding this specific deletion.  Just wondering if…"
Aug 12

Profile Information

About me:
I live in Ireland
About my family:
My niece has a little boy of 10 years who has beendiagnosed with DMD - deletions in exons 5 - 7
Name(s) of child(ren)/individual(s) with Duchenne:
John
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Ireland

Comment Wall

You need to be a member of PPMD Community to add comments!

Join PPMD Community

  • No comments yet!
 
 
 

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2018   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service