Hope Donovan
  • Phoenix, AZ
  • United States
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  • Mark Perrotte

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Profile Information

About me:
Im A single mother of 4.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Phoenix Az

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At 6:23pm on February 20, 2012, Mark Perrotte said…

Hi Hope.  I am a single father of two hoping to connect to families close to me.  Your about 4 hours from me,  I have a page on facebook that I just started to share with other families some of my experiences with my son's condition.  I would love to hear back from others who could give advise as well.  I have had no support from the MDA or from the neurologist that my son see's.  Especially in behavior and school, but its ok, because I have educated myself and have learned new approaches to handling our problems and keeping our stress down.  The page is LIVING WITH DUCHENNES MUSCULAR DYSTROPHY and my name is Mark Perrotte.  I refuse to allow my kid to be treated like a number or be swept aside by doctors who have no emotional attachment.  He is the everything, and  to be honest so are any of the kids facing this despicable disease.  Hope to hear from you. Thanks


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