Holly Peay
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Holly Peay's Discussions

Propose research that is important to you

Started this discussion. Last reply by Michele Jul 1, 2014. 11 Replies

Adding your experiences with Duchenne or Becker to ongoing research is vital…Continue

CDC Public Health Grand Rounds: Where in health is disability? Public health practices to include people with disabilities. REBROADCAST w/Live Q&A: January 30, 1:00-2:00 pm ET

Started Jan 29, 2013 0 Replies

NCBDDD’s Division of Human Development and Disability is pleased to announce a rebroadcast and live question and answer session of the CDC Public Health Grand Rounds:  Where in health is disability?…Continue



Holly Peay, Vice President, Education & Outreach

Profile Information

About me:
I am PPMD's Vice President of Outreach and Education.
Richmond VA

Holly Peay's Blog

PPMD’s Benefit/Risk work highlighted in groundbreaking reports

Posted on June 2, 2015 at 1:00pm 0 Comments

On May 13th the Medical Device Innovation Consortium (MDIC) released a report on incorporating patient preferences into the FDA’s benefit/risk assessments. It was much anticipated by PPMD as we continue our “aggressive engagement” with the FDA and industry trial sponsors. The report is full of really…


FDA Acknowledges the Importance of Benefit-Risk Preferences: Why this Matters to Duchenne

Posted on January 26, 2015 at 10:23am 0 Comments

This started as a blog about the second publication on PPMD’s benefit/risk study, which was published in late December in a journal called The Patient (and more on that later). But something remarkable happened this week that helps frame…


PPMD and Santhera Pharmaceuticals Team Up on New Benefit/Risk Study Focused on Pulmonary Therapies

Posted on November 25, 2014 at 9:00am 0 Comments

PPMD is proud to announce a collaboration with Santhera Pharmaceuticals on a benefit/risk study that will focus specifically on patient and caregiver preferences regarding pulmonary therapies in the disease, and will be based on data from Santhera’s successful phase III clinical trial of idebenone. One of the recommendations in our community’s…


Let’s improve DuchenneConnect’s informed consent. Give your opinion by September 7th.

Posted on August 28, 2014 at 11:25am 0 Comments

You may be thinking, “An informed consent document? No way do I want to read one of those!” But you can demonstrate the power of our community and help us write a more understandable, responsible informed consent for our community’s registry.

As many of you know, DuchenneConnect was…


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