Heather Sims
  • Female
  • Dyersburg TN
  • United States
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Heather Sims's Discussions

feeding tube for younger DMD boys

Started this discussion. Last reply by Samantha Dearing Dec 1, 2009. 5 Replies

 

Heather Sims's Page

Profile Information

About me:
I am a teacher at Dyersburg Middle School. I have a 10 year old son named Liam that has DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Liam
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Dyersburg TN

Comment Wall (8 comments)

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At 9:59pm on December 2, 2009, Liisa Underwood said…
I'm sorry about the mix up with Dr. Apkon. I accidentally commented on that to you instead of another mom. Why no to the tube? I found fruit shakes to be good, if that is allowed. Favorite milk with banana & mixed berries or banana & orange, etc.
At 2:13pm on December 2, 2009, Liisa Underwood said…
Yes, you did a great job explaining things. I hope things go well with your discussion with the pediatrician regarding the feeding tube and with Dr. Apkon @ Childrens.

Warmest regards, Liisa
At 5:13pm on November 30, 2009, Liisa Underwood said…
Heather,

I hope this is not too much to ask: I am curious as to how the disease and/or medications may have impacted the weight of your son.

Warmest regards, Liisa
At 8:22pm on October 30, 2008, Johnny said…
Hey Heather,
The reason we are thinking about moving to Vandy is I dont think Justin is getting the care he should be. We dont ever do PT we have never even seen a cardiologist all they do when we go is kinda of look him over and say come back in 3 months.Seems to me all they are doing is tracking his condition. After I have been on here I see people are doing PT seeing cardiologist and getting alot better care. I know Vandy has a great Hospital and good doctor's I had a surgery performed there one time. I just feel like its a waste of time to go to the Memphis clinic.
At 8:31pm on October 29, 2008, Johnny said…
Hey Heather,
We live in Huntingdon Tn our son will be 10 in Jan. I'am new to this forum also. we use the Memphis clinic but have been thinking about moving to Vandy. Just wanted to say hey we know what you guys are going thru.
Johnny
At 6:44pm on October 25, 2008, Kristi Powell said…
We use Vanderbilt. I only use the memphis MDA for camp. I had heard about the two Dr's in memphis and wasn't impressed what I had heard. Our peditirician also referred us to Vanderbilt. I am acutally quite pleased with the care we get there. You will find that on this board, you will hear a lot about Cincy Childrens Hospital and a Dr. Wong. EVERYONE pretty much agree's that she is the top Doc for DMD. Reason why I mention this is because we actaully have her cardiologist that used to be on her team at Vanderbilt.. AND the Neurologist at Vandy also did his residency there..so, I feel we are in good hands. I am no way implying that Memphis is not good, I just don't know a lot about it, only what I have heard, but no personal experience other than camp ( which I just love Norma and the gang). Talk to others on the TN group... Everyone is real helpful here!
At 4:01pm on October 25, 2008, Kari said…
Heather, Welcome to PPMD Community.
At 9:49pm on October 24, 2008, Kristi Powell said…
Welcome friend! Check out the " groups" and find the Middle East Tn...actually it involves all of TN..but join that group and talk to those on there. Some use Vanderbilt other's use various clinics...
 
 
 

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