Posted on November 25, 2009 at 5:42pm
Thanks to you for giving us hope. I am a grandmother of a beautiful little boy recently diagnosed with duchenne.. People like you inspire me to keep up the hope and do as much fundraising and political action as possible to raise money for research and keep those in Washington DC. aware of the need for pushing funds for duchenne md. and to NIH for research. I give thanks to those scientists worldwide working on treatments and cures. Most of all I give thanks to all our boys who are the most… Continue
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Harriet, We had to move the date of the Shootout - it's a couple weeks earlier. Our 7th Annual Shootout for a CURE is Saturday, July 7th. If you can make it that would be awesome! ~Vicky
Its being a while. I have to talk to you about the ING next year please call me are you convinience, hope your grandson is doing great!!!
We hope you had a great time and I will be mailing my donation!! Thank you!!!
Thank you so much for contacting me, I have not been able to connect with any other family in Miami. What a coincidence I, ran a marathon 5 years ago, just started training again. I will contact you to get more details on the 5 K, I haven't run in five years right before my Nicolas was born. I have been giving a lot of thoughts on how to find a way contribute and try to make this path a little less painful for others. You can call me any time as well 786-205-7155, please let me know if you ever need my assistance with translation to help other families. Best regards, Aty Piedra
I had the pleasure of meeting your son and his wife at PPMD's conference in Atlanta recently. They are amazing parents and little Grant is blessed to have such loving and informed parents. My grandson, Nicholas, was diagnosed 2 years ago when he was 4. He is doing good (much better than before he was diagnosed). There is a lot of research taking place the past five years and I am hopeful a cure or at least better treatments are on the horizon for all our boys. Heather showed me a picture of Grant and you have a handsome grandson. I will add him to my prayer list and look forward to supporting your family. A DMD diagnosis certainly affects the entire family so feel free to contact me if you would like to visit. By the way, Nicholas' father (my son) was born in Homestead, Fl while we were stationed there. I have lots of fond memories of our time living in Dade County.