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Harriet Meermann Female Miami, FL United States: Favorite

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About me:: I am a teacher in Dade County Florida.

About my family:: I have two sons and four grandsons.

Name(s) of child(ren)/individual(s) with Duchenne:: Grant

Age(s) of child(ren)/individual(s) with Duchenne:: 0-3

City:: Houston, Texas

Harriet Meermann's Blog

Thanks

Posted on November 25, 2009 at 5:42pm 0 Comments 0 Favorites

Thanks to you for giving us hope. I am a grandmother of a beautiful little boy recently diagnosed with duchenne.. People like you inspire me to keep up the hope and do as much fundraising and political action as possible to raise money for research and keep those in Washington DC. aware of the need for pushing funds for duchenne md. and to NIH for research. I give thanks to those scientists worldwide working on treatments and cures. Most of all I give thanks to all our boys who are the most… Continue

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At 9:12am on June 14, 2012, Vicky Williamson said…: Harriet, We had to move the date of the Shootout - it's a couple weeks earlier. Our 7th Annual Shootout for a CURE is Saturday, July 7th. If you can make it that would be awesome! ~Vicky

At 10:40pm on July 20, 2011, Manuel Antonio Quintero said…: Its being a while. I have to talk to you about the ING next year please call me are you convinience, hope your grandson is doing great!!!

At 11:30am on June 24, 2011, Vicky Williamson said…: Harriet, We ARE having our fundraiser again this year. It is Saturday, July 16th. I'm attaching a flyer to give you an idea of what we do. 2011_Shootout_Flyer.pdf

At 10:03am on May 1, 2011, Manuel Antonio Quintero said…: We hope you had a great time and I will be mailing my donation!! Thank you!!!

Gloria Q

At 7:51pm on March 31, 2011, Vicky Williamson said…: We will be having our 6th Annual Shootout for PPMD on Saturday, July 16th, 2011. It is at Gunslick Trap Club in Holmen, WI which is just north of La Crosse. It runs from 9 am - 5 pm and besides trapshooting, there's raffles, silent auction, food & beverages and we try to have some time of fun things going on for the kids too.

At 9:22pm on August 16, 2010, Atabeira Piedra said…: Hi Harriett,
Thank you so much for contacting me, I have not been able to connect with any other family in Miami. What a coincidence I, ran a marathon 5 years ago, just started training again. I will contact you to get more details on the 5 K, I haven't run in five years right before my Nicolas was born. I have been giving a lot of thoughts on how to find a way contribute and try to make this path a little less painful for others. You can call me any time as well 786-205-7155, please let me know if you ever need my assistance with translation to help other families. Best regards, Aty Piedra

At 3:39pm on May 27, 2010, The Gorton Family said…: We keep track of the comments, but aren't very active on the site. Justin is ten and fairly active for his diagnosis. He is not in a chair yet. We did recently move to a renovated home where he doesn't have to deal with stairs. The no barrier shower is in, and ramping is available. We just live day-to-day.

At 11:25pm on June 28, 2009, Anita Bullers said…: Hello Harriet,
I had the pleasure of meeting your son and his wife at PPMD's conference in Atlanta recently. They are amazing parents and little Grant is blessed to have such loving and informed parents. My grandson, Nicholas, was diagnosed 2 years ago when he was 4. He is doing good (much better than before he was diagnosed). There is a lot of research taking place the past five years and I am hopeful a cure or at least better treatments are on the horizon for all our boys. Heather showed me a picture of Grant and you have a handsome grandson. I will add him to my prayer list and look forward to supporting your family. A DMD diagnosis certainly affects the entire family so feel free to contact me if you would like to visit. By the way, Nicholas' father (my son) was born in Homestead, Fl while we were stationed there. I have lots of fond memories of our time living in Dade County.

At 12:40pm on June 22, 2009, Kim Simpson said…: Austin was diagnosed late. We did not know he had it until he was 8. He has been on steriods since he was 8 1/2 or 9. He is 12 now. He will be 13 in March.

At 11:22am on June 4, 2009, Kim Simpson said…: Make sure Grant gets a doctor that knows alot about Duchenne. We went to Memphis at first for Austin. The doctors were not up to date about Duchenne. The doctor basically said take him home and love him it was nothing they could do. So, we immediately came home and starting researching and contacted Parent Project Muscular Dystrophy. Pat Furlong called us personally within the hour to discuss options. We go to Dr. Wong for his care now. The drive is not that bad it is about an 8 hour drive. We are so glad we chose Dr. Wong. Austin is 12 years old and is still walking and doing great. He is on deflazacort, lisinipril, for heart health, and several supplements.