Thank you for your comments on my blog. Yes, this shitty disease has made me stronger - I have to be for my son and my 2 daughters, and for my husband as well.
Even though this disease sucks (as do so many other diseases affecting children), I find that so much good is coming out of it in our lives. Apart from our priorities totally changing, we are determined to make a difference, make DMD a "mainstream disease" in the public so we can get more funding, and government & public support. Many years ago, not many people knew much about SIDS or MS or Diabetes, or even Cystic Fibrosis, and yet today we are all aware of these diseases. We need to bring awareness, not only to our country but to the rest of the world. Through awareness we will raise more money, through money we will be able to fund research, and through research we will find a cure. My husband and I will not rest until a cure is found, as I don't want more generations of families to go through what we are all going through.
Thank you so much for your support to your friends and the rest of the community. It means a lot to all of us.