Hally Goldstein
  • Female
  • Chicago, IL
  • United States
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Hally Goldstein's Discussions

Questions from newly diagnosed parent

Started this discussion. Last reply by Andrew Kerr Oct 11, 2013. 6 Replies

My son was diagnosed this week with Duchenne. He has exon deletion 45. He is 5.5 years old (will be 6 in January). We are seeing Dr. Nancy Kuntz at the Lurie Children's Hospital in Chicago. I have a…Continue

 

Hally Goldstein's Page

Latest Activity

Hally Goldstein joined PPMD's group
May 12, 2014
Hally Goldstein replied to Maggie's discussion Question about gonadal mosaicism
"Your sisters should be tested since your mother may have had more then one affected egg with the mutation."
Feb 10, 2014
Hally Goldstein replied to Fred Luchetti's discussion Fat Embolism
"What are you supposed to do about it?"
Jan 13, 2014
Hally Goldstein is attending PPMD's event
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2014 Annual Connect Conference at Chicago

June 26, 2014 to June 29, 2014
2014 Connect Conference in ChicagoDate: June 26-29, 2014Location: Chicago Marriott Downtown Magnificent MileRegister now: http://www.parentprojectmd.org/site/PageServer?pagename=Connect_conference_2014See More
Oct 14, 2013
Andrew Kerr replied to Hally Goldstein's discussion Questions from newly diagnosed parent
"That's not a bad idea at all.  My wife and I have been making an effort over the last number of years to get and stay in better shape.  My wife is a carrier, and has some muscle soreness that may or may not be related to her…"
Oct 11, 2013
Hally Goldstein replied to Hally Goldstein's discussion Questions from newly diagnosed parent
"Thanks, Andrew. This is very helpful. I wanted to just clarify that I was asking if my husband and I should be doing strength training so in the future we will be able to help our son physically."
Oct 11, 2013
Andrew Kerr replied to Hally Goldstein's discussion Questions from newly diagnosed parent
"I think our boys get along as most brothers would.  For the most part they're great together, but they fight too.  Some of it is probably because they are both on Deflazacort and there are some heightened emotions that go along with…"
Oct 11, 2013
Hally Goldstein replied to Hally Goldstein's discussion Questions from newly diagnosed parent
"Thank you both so much. We are still trying to just wrap our minds around this. In just 6 weeks we went from finding a high ck, spending 5 days in the hospital for a hip effusion, first going to rheumatology (my father has polymyositis so…"
Oct 11, 2013
Donna replied to Hally Goldstein's discussion Questions from newly diagnosed parent
"Hi Hally,  I'm directly across the state from you in the beautiful northwest corner of Illinois.  We are on year 5 of diagnosis - also diagnosed at age 5.  Please feel free to email me with any specific questions.  You are…"
Oct 11, 2013
Hally Goldstein joined Kristin Hiatt's group
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Illinois FACES

A place to add suggestions, comments, ask questions or talk about anything with parents and caregivers in the Illinois FACES group.
Oct 10, 2013
Andrew Kerr replied to Hally Goldstein's discussion Questions from newly diagnosed parent
"Hi Hally, I have two sons with DMD (and a deletion of 45).  They are turning 8 and 5 in about a month.  I'm happy to answer any questions you have, privately, or on the board."
Oct 10, 2013
Hally Goldstein posted a discussion

Questions from newly diagnosed parent

My son was diagnosed this week with Duchenne. He has exon deletion 45. He is 5.5 years old (will be 6 in January). We are seeing Dr. Nancy Kuntz at the Lurie Children's Hospital in Chicago. I have a lot of questions that I think parents who have been through this could help me with. I don't think it makes sense to just bombard the message board with a bunch of questions- so if you are able to help me out please inbox me so I can contact you. A greatly appreciate your help!See More
Oct 10, 2013
Hally Goldstein is now a member of PPMD Community
Oct 9, 2013

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
Yehuda
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Chicago
State:
Il

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