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Gwen Holbrook-Klapp
- Female
- Greenfield Center, NY
- United States
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Profile Information
- About me:
- My husband and I have been together for over 30 years. We have three boys. Our oldest and youngest boys have Duchenne. We have been blessed to have a wonderful community who have helped us on our journey.
- About my family:
- Our son Matthew passed away in 2008 he was 19 years old. Our middle son is now 21 and in college. Our youngest, Jordan, is 15 and a freshman in high school. Both boys had spinal fusion at ages 15 and 13. My neice, Shea Holbrook, is using her racing career to raise funds and awarness.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Matthew and Jordan
- Age(s) of child(ren)/individual(s) with Duchenne:
- 13-18, 19 or older
- City and State:
- Greenfield NY
- Country:
- USA
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Events
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Gala Blue Ball
May 26, 2012 at 6:30pm to May 27, 2012 at 1am – Esplanade Hotel, Fremantle
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Hi my name is David Evans
I am 17 years old and i have Duchenne Muscular Dystrophy. I live in Robesonia PA. I have been searching for someone to talk to who has the same condition. Do you know anyone i could talk to.