My husband and I have been together for over 30 years. We have three boys. Our oldest and youngest boys have Duchenne. We have been blessed to have a wonderful community who have helped us on our journey.
About my family:
Our son Matthew passed away in 2008 he was 19 years old. Our middle son is now 21 and in college. Our youngest, Jordan, is 15 and a freshman in high school. Both boys had spinal fusion at ages 15 and 13. My neice, Shea Holbrook, is using her racing career to raise funds and awarness.
Name(s) of child(ren)/individual(s) with Duchenne: