Guillermo Rivera
  • Male
  • Florida
  • United States
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Who benefits from exon skipping?

Started this discussion. Last reply by Jonathan Jul 29, 2013. 2 Replies

 

Guillermo Rivera's Page

Profile Information

Name(s) of child(ren)/individual(s) with Duchenne:
James
Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Wellington Florida

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Comment Wall (4 comments)

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At 11:16pm on July 29, 2013, XIMENA said…
hi Guillermo I would like to know if you speak spanish I am new on this and I don't know what to do... my doctor didn't tell me about things that I found on line could you help my family please? I have not meet any family or get any suppport I am very sad the only thing I do is cry ;(... My email ximepatib@ gmail.com
I don't know how to go to events or things like that I think sometimes that is because of my english I dont speak very well help please
At 6:42pm on May 23, 2010, Leslie Guzman said…
Problem solved. Thanks!
At 12:49am on May 23, 2010, Leslie Guzman said…
Hi Guillermo,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416
At 8:47pm on August 12, 2008, Jennifer Collier said…
Hi Guillermo! Please join the Florida Families group! I look forward to seeing you there!
 
 
 

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