I am a 38 year old surviver of Duchenne muscular dystrophy. My passion in life is supporting other young adults with (DMD) and other disabilities to live their lifes to the fullest and without boundaries.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
19 or older
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Thank you for inviting us to join your group. We would like to email you if possible. My son is 21 and he will be in Mountain View, CA this summer. We are from NJ and are very close friends of Beverly and Anthony Devergillo. You can email us at firstname.lastname@example.org. we are very excited to hear from you. Prasad
I am going to contact a friend of mine who is a truama nurse here in So cal to ask her advice regarding getting some assistance your way. I don't think she has direct connections up in San J but she may know avenues for obtaining somebody. This may take awhile but please feel free to contact me if things seem to be dragging on.
Gregory, I think Christopher could use some counseling. I've suggested it to him but he disagrees...tells me he is 20 now and can do what he wants to do. He doesn't like to be told anything. I'm going to get together with his father and try to come up with something.
Hi Gregory, I have tried to get Christopher to do something. He just doesn't want to do anything. He doesn't talk that much when he does have a friend. They don't last long. I wish I could get him to go on the computer to talk to others with DMD but he doesn't want to.