"We are carrying a flag with the names of 1,000 boys, some of whom we've lost, some of whom we're still fighting to save. You can follow my trek blog at http://newsite.kannoncom.com
Gregg Kaloust"
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Gregg Kaloust
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- Gardiner, ME
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Gregg Kaloust's Discussions
Everest to End Duchenne
Started this discussion. Last reply by Gregg Kaloust Sep 30, 2015. 2 Replies 0 Favorites
In October 2015 a small group of familes and friends of boys with DMD are trekking to Everest Base Camp in Nepal to raise awareness and funds for research. My grandson, Griffin, has DMD (but it…Continue
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Gregg Kaloust posted an event
Everest to End Duchenne at Nepal
October 7, 2015 to October 29, 2015
A group of 8 determined parents and friends will trek to Everest Base Camp to raise funds and awareness for research to end Duchenne. We'll be planting a prayer flag with the names of hundreds of biys with DMD.See More
Gregg Kaloust replied to Gregg Kaloust's discussion Everest to End Duchenne"oops, typo. it's http://www.everesttoendduchenne.org/"
Gregg Kaloust posted a discussionEverest to End Duchenne
In October 2015 a small group of familes and friends of boys with DMD are trekking to Everest Base Camp in Nepal to raise awareness and funds for research. My grandson, Griffin, has DMD (but it doesn't have him. He's my hero!) His father and I are going to climb to this height because these boys can't. We're bringing a prayer flag with the names of hundreds of biys with DMD to plant at base camp. A link to my fundraising campaign is at…See More
Profile Information
- About me:
- I'm 65. I have 5 grandchildren. I live in rural Maine, where I run a small software company that provides email and collaboration tools in the cloud.
- About my family:
- I have three daughters, one of whom has a son who has DMD. He is my hero.
- Name(s) of child(ren)/individual(s) with Duchenne:
- Griffin Stoudnour
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6
- City:
- Gardiner
- State:
- ME
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Events
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2017 Annual Connect Conference
June 29, 2017 to July 2, 2017 – Chicago, IL
0 Comments 2 Favorites -
Volley for Mitchell
July 15, 2017 all day – Rockford, MI
0 Comments 0 Favorites -
Friar Fight to End Duchenne Golf Tournament
July 29, 2017 all day – Thornapple Pointe Golf Club
0 Comments 0 Favorites -
Mitchell's Run thru Rockford
August 19, 2017 all day – Rockford, MI
0 Comments 0 Favorites
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