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Gregg Kaloust
  • Male
  • Gardiner, ME
  • United States
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Gregg Kaloust's Discussions

Everest to End Duchenne

Started this discussion. Last reply by Gregg Kaloust Sep 30, 2015. 2 Replies

In October 2015 a small group of familes and friends of boys with DMD are trekking to Everest Base Camp in Nepal to raise awareness and funds for research. My grandson, Griffin, has DMD (but it…Continue

Tags: Gus, for, Hope, DMD, everest

 

Gregg Kaloust's Page

Latest Activity

Gregg Kaloust replied to Gregg Kaloust's discussion Everest to End Duchenne
"We are carrying a flag with the names of 1,000 boys, some of whom we've lost, some of whom we're still fighting to save. You can follow my trek blog at http://newsite.kannoncom.com Gregg Kaloust"
Sep 30, 2015
Gregg Kaloust posted an event
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Everest to End Duchenne at Nepal

October 7, 2015 to October 29, 2015
A group of 8 determined parents and friends will trek to Everest Base Camp to raise funds and awareness for research to end Duchenne. We'll be planting a prayer flag with the names of hundreds of biys with DMD.See More
Sep 16, 2015
Gregg Kaloust replied to Gregg Kaloust's discussion Everest to End Duchenne
Sep 16, 2015
Gregg Kaloust posted a discussion

Everest to End Duchenne

In October 2015 a small group of familes and friends of boys with DMD are trekking to Everest Base Camp in Nepal to raise awareness and funds for research. My grandson, Griffin, has DMD (but it doesn't have him. He's my hero!) His father and I are going to climb to this height because these boys can't. We're bringing a prayer flag with the names of hundreds of biys with DMD to plant at base camp. A link to my fundraising campaign is at…See More
Sep 16, 2015
Gregg Kaloust is now a member of PPMD Community
Sep 16, 2015

Profile Information

About me:
I'm 65. I have 5 grandchildren. I live in rural Maine, where I run a small software company that provides email and collaboration tools in the cloud.
About my family:
I have three daughters, one of whom has a son who has DMD. He is my hero.
Name(s) of child(ren)/individual(s) with Duchenne:
Griffin Stoudnour
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Gardiner
State:
ME

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