"What is most economical site to purchase Deflazacort and Idebenone in the US ?"
Govind's Groups
Govind's Page
Latest Activity
Govind replied to Debbie Schneider's discussion COQ10 versus Idebenone? in the group Medication/Supplement Journals"is idebenone available in liquid or chewable form online ?
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Govind joined MicahsDaddy's group
Medication/Supplement Journals
A place to keep a journal of what medication(s)/supplement(s) you are giving to your child.See More
Govind added a discussion to the group India
New treatments in India
I heard about stem cells with Dr Shroff. Can anyone provide their experience ?
Govind posted a status"For keeping ankle and heel chord strong as long as possible....are there specific exercises and supplements that have helped ?"
Govind posted a status"Has anyone switched from prednisolone to deflazacort ? Seeing increased facial hair and weight gain the 6 months my son has been on it."
Govind posted a status"Hi : my 7 yr old son has point mutation @ IVS64+1...anyone else has same specific diagnosis ?"
Govind commented on Sharon Hesterlee's blog post Out and About"That's great to know. I really hope there are clinical trials in which he is eligible this year."
Govind replied to maxine Strydom's discussion IDEBENONE"Thanks a lot for the links, Naomi. Our doctor does not think there is any added benefit of Deflazacort over prednisolone. He did recommend CoQ10 as well as ECGC I.e. tea catechin. I see you are giving your son 1000 mg/day of l-carnitine....I will…"
Govind replied to maxine Strydom's discussion IDEBENONE"Hi Naomi: Hi..this is Govind. My son is 6 and we got th diagnosi. Couple month ago. Great to hear that you son is really benefiting from Idebenone. Is it available in the US over the counter or can I get it online ? I thought it was still undergoing…"
Govind commented on Sharon Hesterlee's blog post Out and About"Sharon....thanks again for the response. I have registered my son through duchenneconnect. Are there any other sites that I should register to ensure access to all trials held around the world ?"
Govind posted a status"Hi All: what is the latest on HT-100 clinical trials ? Does anyone know if it is a potential therapy for all DMD patients ?"
Govind commented on Pat Furlong's blog post MD Breakthrough - What to Make of It"Hi Pat: new to this site...really wonderful with a lot of useful information. What is the latest on stem cell therapy and efforts of folks like Dr. Riordan, Cossu ?
Thanks,
Viny"
Govind commented on Sharon Hesterlee's blog post Out and About"Thanks for the response, Sharon. What are the typical doses of green tea and resveratrol that People are giving to their kids ? I have heard about L-arginine and CoQ10.....anyone using them ? What dose levels ? Regarding utrophin upregulators, which…"
Profile Information
- Age(s) of child(ren)/individual(s) with Duchenne:
- 4-6, 7-12
- City and State:
- new york, new york
Comment Wall (1 comment)
- At 11:06am on November 8, 2011,
StaffPPMD said… Welcome Govind! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.
Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 - community@parentprojectmd.org
And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.
Need help using this community site? Visit Ning's Help Page.
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