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Govind's Discussions

BIGLYCAN and SMTC 1100 trials

Started this discussion. Last reply by Moein Jun 19, 2013. 1 Reply

BIGLYCAN trials....any update if they will start clinical trials soon ? Any update on SMTC 1100 Phase 2 trials ? Thnx.Continue


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Age(s) of child(ren)/individual(s) with Duchenne:
4-6, 7-12
new york, new york

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At 2:44pm on October 11, 2015, Govind said…
Hello everyone : my son has been on prednisolone for 4 years, thinking of changing over to Deflazacort. Can anyone share their experience with the switch. I read Deflazacort has less side effects, may not be more efficacious.

If I do change, what is the best way to get Deflazacort into US...from Canada ? Online ? A good company of pharmacy that people can recommend ?

At 3:30am on November 15, 2013, Rahul Singh said…
Hi Govind,
I got your reference from PPMD community. My son has been diagnosed with DMD. He is Athrv, age 3 and we stay in Gurgaon. Was just wondering if it is possible to get in touch to understand more about DMD management/care in US. Thanks.
Regards, Rahul Singh.
At 11:06am on November 8, 2011,

Welcome Govind! We hope using the community site to connect with families all over the world to share stories, news, and information about Duchenne is empowering for you and your family.


Please don't hesitate to contact us by phone, email, or message if you ever need anything -- 800-714-5437 -


And if you haven't already, we hope you consider registering on PPMD's main website. Registering allows us to send you information tailored to parents & families of boys with Duchenne, e-newsletters, additional web-based research reports, and other information specifically targeted for members of the community.



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