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Gina Manning
  • Female
  • Garwood, New Jersey
  • United States
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Gina Manning's Friends

  • Pamela Myers
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CRAIGIE AND MARC'S PAGE

Latest Activity

Gina Manning shared Will Nolan's blog post on Facebook
Feb 2, 2012
Pamela Myers left a comment for Gina Manning
"Hello Gina, I am new to this site and happy you requested my friendship. My son is 12 years old and was diagnosed very early (18 months) but what really brought me here was the concerns of some staff members at my son's school. my son has…"
Dec 22, 2011
Gina Manning is attending PPMD's event
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2011 Annual CONNECT Conference in Baltimore, MD at Baltimore, MD

July 6, 2011 to July 10, 2011
MARK YOUR CALENDAR: PPMD 2011 Connect Conference in BaltimorePPMD reminds you  that the 2011 Connect Conference and the 2011 Duchenne Therapeutic Development Meeting will take place at the Baltimore Marriott Waterfront, July 6-10, 2010. The scientific conference will begin on Wednesday, July 6. The Connect conference will begin on Thursday, July 7.  Details about our hotel block and full agendas for both…See More
Feb 17, 2011
Gina Manning posted photos
Jun 25, 2010
Gina Manning is attending PPMD's event
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Pour for a Cure- New Jersey at Hyatt New Brunswick, NJ 08901

May 8, 2009 from 7pm to 11pm
Do not miss this event! Our friends at Vine Republic in Mountainside, New Jersey have chosen an outstanding variety of wines for this tasting. In total, over a dozen vendors will be pouring over 200+ selections - just for you. Wine will take center stage, however we did not forget the beer and spirits connoisseurs either. We have also arranged an olive oil and balsamic vinegar tasting! Appetizers, a full buffet dinner and dessert will compliment the wines, so bring your appetite as well.…See More
Apr 9, 2009

Profile Information

About me:
I am a stay at home mom of four kids. My husband and I have been together for almost twenty three years.(married for 13)
About my family:
I have a daughter Stephanie she is 11, a son Christopher he is 10, Craig (DMD) 9 ,and Marc (DMD) 6. Craig and Marc have a duplication of exons 10-11.
Name(s) of child(ren)/individual(s) with Duchenne:
Craig Joseph, Marc Thomas
Age(s) of child(ren)/individual(s) with Duchenne:
7-12, 13-18
City:
Garwood, New Jersey

YOUR SON IS YOUR SON FIRST AND A DMD PATIENT SECOND.

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Comment Wall (35 comments)

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At 10:28am on December 22, 2011, Pamela Myers said…

Hello Gina, I am new to this site and happy you requested my friendship. My son is 12 years old and was diagnosed very early (18 months) but what really brought me here was the concerns of some staff members at my son's school. my son has an aide with him all day. this is new this year and he is very comfortable with him but out of frustration occasionally my son will say things like i hate my life. however, i am not sure the aide knew how to handle this statement. I know this disorder can take a toll on him and the family but my son tends to say things out of frustration and not out of depression but I do appreciate their concern. anyway, my hunband and I have been reaching out more for emotional support such as seeing a councilor and of course this site to help us get through these tough years. I am from Clayton, NJ. sad to say there is nt many support groups around here that focuses on this disorder (DMD). How about yourself?

At 10:54pm on April 16, 2011, Joniann Bencivenga said…
Hi Gina!
At 3:55pm on March 13, 2011, kimmy watters said…
 hey gina  my name is kimmy watters i just would  like to say i have tons of respect and greatly admire you how are coping today. kimmy watters
At 6:12am on June 9, 2010, Lauren M Fritz said…
Hi Gina,
Glad to meet you! We live in Pottstown, PA. My boys Jake (almost 7) and Ryan (3 1/2) both have deletions of exons 46-47. We go to CHOP and work with Dr. Finkel. We try our best to do this thing day by day, but my mind doesn't always let me work that way. Jake is on deflazacort, and has lately had some issues with not growing. We'll be back to CHOP endocrinology tomorrow for some advice. How are your boys right now? Do you go to CHOP? We were also in Atlanta last year, but won't be able to make the conference this year. A family vacation is the priority this summer!
At 4:39pm on July 17, 2009, Vee Lail said…
Hi Gina: I really enjoyed meeting you and your hubby in Atlanta and hanging out with you. I appreciate that you talked to me even though I am "not from New Jersey"....LOL Your pictures and video are great!! Beautiful family. Keep in touch. Hopefully, we will meet again at next year's meeting in Denver.

Vee
At 8:34pm on March 6, 2009, Eileen and Peter Kearney said…
Hi Gina,
Glad to hear from you and I hope to see you soon!
Eileen
At 6:53pm on March 2, 2009, Eileen and Peter Kearney said…
Hi Gina,
How are you and the rest of your family? We are ok...always busy running aorund somewhere. Kevin is having a bit of a difficult year in 1st grade. I really wish he had repeated kindergarten. He is so immature and I think he would have done better academically if he were in k instead of 1st. He is having more difficulty getting around. It is so hard to watch but we keep praying!
I saw your fundraiser on facebook. That's great!!! Good luck!!! Do you have a facebook? I looked for your name but there were lots of Gina Mannings! You can find me at my full name: Eileen McAdams Kearney.
Are you going to the conference this year? I'm not sure if we are. I really want to go but we'll have to see.
I'd love to get together when the weather gets warmer! Take care! Keep in touch!!
XO Eileen
At 9:12am on November 20, 2008, Tammy Lieberman said…
I love you guys.
At 12:53am on October 31, 2008, Rhiannon Traigle said…
I just wanted to stop in and let you know that I'm thinking of you!! Call or write if you need a friend! You know I'm here.
At 10:09pm on October 4, 2008, Dana Maher said…
Great pictures of the kids!!! I hope you know that if there is anything I can do for you, just call.
Dana

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