Hi Gina! Welcome to the PPMD Community. I am sorry about your son's diagnosis. You and your husband have found a great source of support here. My son is 14 with DMD. We are amazed that he is still walking with occassional wheelchair use. I see you are from St. Louis. We are about 3 hours away in Southern Illinois.
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The JettRide ll will be coming through St. Louis early August 2010!! We would love to connect with you - please see the site, www.jettride.org
I would also like to send you a packet of information and a copy of the JettRide 2007 movie - my daughter did the ride in 07.
Let me know, we would love to connect and spread awareness about DMD...also to connect FAMILIES together across the countrry!!!!
Let me know asap,