Gina Kopp
  • Female
  • Saint Louis, MO
  • United States
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  • Claire Diemler
  • Jeffrey Kopp
  • Pat Furlong
  • Lisa Jones

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Profile Information

About my family:
http://www.parentprojectmd.org/goto/kopp
Name(s) of child(ren)/individual(s) with Duchenne:
Liam Henry Kopp (born Feb. 16, 2010)
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
St. Louis, Missouri

Comment Wall (2 comments)

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At 9:20pm on April 15, 2011, Lisa Jones said…
Hi Gina! Welcome to the PPMD Community. I am sorry about your son's diagnosis. You and your husband have found a great source of support here. My son is 14 with DMD. We are amazed that he is still walking with occassional wheelchair use. I see you are from St. Louis. We are about 3 hours away in Southern Illinois.
At 4:29pm on March 1, 2010, Christine McSherry said…
Hi Gina,

The JettRide ll will be coming through St. Louis early August 2010!! We would love to connect with you - please see the site, www.jettride.org

I would also like to send you a packet of information and a copy of the JettRide 2007 movie - my daughter did the ride in 07.

Let me know, we would love to connect and spread awareness about DMD...also to connect FAMILIES together across the countrry!!!!

Let me know asap,

Christine
 
 
 

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