PPMD Community

Gina Kopp
  • Female
  • Saint Louis, MO
  • United States
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Gina Kopp's Friends

  • Claire Diemler
  • Jeffrey Kopp
  • Pat Furlong
  • Lisa Jones

Gina Kopp's Page

Latest Activity

Gina Kopp replied to Jessica Tucker's discussion Our first IEP in the group Early Years (diagnois-age 6)
"My son Liam is 4 and in our school district's early childhood education center in an inclusion room. These services were determined after his first IEP. We love his school as he mixes with kids of all abilities and is making friends with all of…"
Oct 30, 2014
Gina Kopp replied to Claire Diemler's discussion Best schools? in the group Illinois/Missouri Families
"I'm so glad to hear that, we just moved to Crestwood from the city and Long is our school. Liam is almost 3 so we have a couple of years yet. He has an intake with Lindbergh pre-school program next week. Our son without Duchenne just…"
Jan 3, 2013
Gina Kopp replied to Claire Diemler's discussion Best schools? in the group Illinois/Missouri Families
"Hi Claire, I've been meaning to respond all week since I first saw this post, but got busy and kept forgetting. Then I discovered last night that your son Henry goes to Wilkinson where my son Miles is in 2nd. grade. What a coincidence!…"
Apr 6, 2012
Gina Kopp and Claire Diemler are now friends
Apr 1, 2012
Gina Kopp joined RAKTIM SINGH's group

exon 46-50 deletion

For group of families having exon 46 to 50 deletion.
Dec 10, 2011

Pat Furlong and Gina Kopp are now friends
Apr 15, 2011
Gina Kopp joined Dee's group

Mom's Cafe

A group for Mom's who like to vent and talk about life with DMD kids
Apr 14, 2011
Gina Kopp joined PPMD's group
Apr 14, 2011
Gina Kopp is now a member of PPMD Community
Jan 4, 2010

Profile Information

About my family:
Name(s) of child(ren)/individual(s) with Duchenne:
Liam Henry Kopp (born Feb. 16, 2010)
Age(s) of child(ren)/individual(s) with Duchenne:
St. Louis, Missouri

Comment Wall (2 comments)

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At 9:20pm on April 15, 2011, Lisa Jones said…
Hi Gina! Welcome to the PPMD Community. I am sorry about your son's diagnosis. You and your husband have found a great source of support here. My son is 14 with DMD. We are amazed that he is still walking with occassional wheelchair use. I see you are from St. Louis. We are about 3 hours away in Southern Illinois.
At 4:29pm on March 1, 2010, Christine McSherry said…
Hi Gina,

The JettRide ll will be coming through St. Louis early August 2010!! We would love to connect with you - please see the site, www.jettride.org

I would also like to send you a packet of information and a copy of the JettRide 2007 movie - my daughter did the ride in 07.

Let me know, we would love to connect and spread awareness about DMD...also to connect FAMILIES together across the countrry!!!!

Let me know asap,


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