Started this discussion. Last reply by damien lynch Mar 4, 2011. 11 Replies 0 Favorites
Hello everyone-My name is Gerardine.I live in Ireland.My sister's young son ,aged 21mths,was recently diagnosed with Duchennes.I need help understanding this disease and also informed advice from all…Continue
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StaffPat Furlong said…
Hello Geraldine. Please let me know if I can be of help. Have you also connected with Jimmy Mooney, Duchenne Ireland?
Warm regards, Pat
Hi Geraldine.
Welcome to PPMD. I am sure you will find alot of answers and plenty of support here on PPMD. Has your sister been found to be a carrier? If yes, then I believe they would check you first before checking your daughter.
To help your sister, I am not sure what I could tell you that would help... Just be there for her... I vividly remember those first few weeks after my nephew's diagnosis. My sister called me at work and I left within a few days to go see them (she is a 4 hour drive away) There wasn't much I could do to help her... but I think just being there was enough for the moment. Just remember to stand by her and support her... Love them and be there for them. I promise you it will get easier. Just take one day at a time.
Tina