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Gerardine Gardezi
  • Female
  • CORK
  • Ireland
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New To Duchennes---How can i help my sister?

Started this discussion. Last reply by damien lynch Mar 4, 2011. 11 Replies

Hello everyone-My name is Gerardine.I live in Ireland.My sister's young son ,aged 21mths,was recently diagnosed with Duchennes.I need help understanding this disease and also informed advice from all…Continue

 

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About me:
My sister's son,aged 19months just diagnosed with Duchennes.Also newborn son awaiting tests when they can actually face it themselves.We are all in such low state......especially my sister and her husband.What can i do to help them?Any good books they can read when they able to face it better?
About my family:
I have two sons....both ok and one daughter.Should i have her tested too.....to see if she has the gene as a carrier?
Name(s) of child(ren)/individual(s) with Duchenne:
J
Age(s) of child(ren)/individual(s) with Duchenne:
0-3
City:
CORK

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At 4:20pm on January 7, 2011,
Staff
Pat Furlong
said…

Hello Geraldine.   Please let me know if I can be of help.   Have you also connected with Jimmy Mooney, Duchenne Ireland?

Warm regards, Pat

At 4:18pm on January 6, 2011, Tina Makitalo said…

Hi Geraldine.

Welcome to PPMD.  I am sure you will find alot of answers and plenty of support here on PPMD.  Has your sister been found to be a carrier?  If yes, then I believe they would check you first before checking your daughter.

To help your sister, I am not sure what I could tell you that would help...  Just be there for her... I vividly remember those first few weeks after my nephew's diagnosis.  My sister called me at work and I left within a few days to go see them (she is a 4 hour drive away)  There wasn't much I could do to help her... but I think just being there was enough for the moment.  Just remember to stand by her and support her...  Love them and be there for them.  I promise you it will get easier.  Just take one day at a time.

Tina

 
 
 

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