Started Jul 21, 2013 0 Replies 0 Favorites
Hi everyone,I am in need of photographs of your children, if you are willing for a fundraiser we are having to End Duchenne. I am looking at putting together a slide show with a couple pictures of…Continue
Started this discussion. Last reply by Sai Chand. Gurujala Feb 13, 2017. 23 Replies 0 Favorites
I have just received the genetic results for Preston. They have found that he is missing Exon 44. I have been doing some research regarding clinical trials being done, but everything I am finding is…Continue
Posted on January 23, 2012 at 1:41pm 9 Comments 0 Favorites
On Jan. 9, 2012, I recieved confirmation that my son Preston has Duchenne's. It will not be untill May that he is seen in the muscle clinic. I am wondering if there are any families that can help me fill in the blanks as to what to expect. I would also like to speak to families from Saskatchewan or Alberta Canada, regarding the services I can access for my son. Thank you.
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Geraldine, My son just turned 5 and is doing well. Please know that we are all here for you and can be found on facebook too. Hugs from California. :)