I have just received the genetic results for Preston. They have found that he is missing Exon 44. I have been doing some research regarding clinical trials being done, but everything I am finding is…Continue
On Jan. 9, 2012, I recieved confirmation that my son Preston has Duchenne's. It will not be untill May that he is seen in the muscle clinic. I am wondering if there are any families that can help me fill in the blanks as to what to expect. I would also like to speak to families from Saskatchewan or Alberta Canada, regarding the services I can access for my son. Thank you.