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Galia Ben Ishay
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  • Israel
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  • taylan çakır
  • Sai Chand. Gurujala
  • Abby Bronson
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  • adi hazan
  • Nimi Langer
  • Moein
  • Ofir Arad
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Galia Ben Ishay's Discussions

Tamoxifen

Started this discussion. Last reply by Galia Ben Ishay 1 hour ago. 30 Replies

Dear all,My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jerusalem.The drug considerably improved his condition: He can…Continue

Any news regarding the Tamoxifen trial???

Started this discussion. Last reply by Jay Griffin May 8, 2016. 1 Reply

Does someone (maybe PPMD) knows something about the advancement of the Tamoxifen trial? Research on mice date back to 2013, why clinical trials are SOOOOO long to start???(…Continue

 

Galia Ben Ishay's Page

Latest Activity

Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Yes Sai Chand, it is still in clinical trial for DMD."
1 hour ago
Sai Chand. Gurujala replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Moein, Officially Tamoxifen has not become DMD medicine right. Still in clinical trials right?  Please share."
yesterday
Moein replied to Galia Ben Ishay's discussion Tamoxifen
"It is already in the market for breast cncer"
yesterday
Sai Chand. Gurujala replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia, I think still "Tamoxifen" is in clinical trials right. It does not come into market yet right?"
Tuesday
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Not really, only 300 less so far, but improvement is here and that's of course the most important."
Tuesday
Vivek replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia Thanks for your reply. I am really happy for you that uour son is showing improvements. Are CPK levels also coming down?"
Apr 20
Vivek favorited Galia Ben Ishay's discussion Tamoxifen
Apr 20
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Vivek, 20mg a day in the evening. Yes it is a prescription drug."
Apr 16
Vivek replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia In what dosage is he using tamoxifem... is it a prescription drug"
Apr 14
Vivek favorited Galia Ben Ishay's discussion Tamoxifen trial to start in November
Apr 12
Vivek favorited Galia Ben Ishay's discussion Tamoxifen
Apr 12
taylan çakır replied to Galia Ben Ishay's discussion Tamoxifen
"Thanks galia for your reply .. We are glad you inform us about the developments frequently .. We fall in your level, we are waiting for the developments in your son curiously."
Apr 4
ANTONIS NIKOLITS replied to Galia Ben Ishay's discussion Tamoxifen
"Thank you for your reply Galia, Unfortunately Prof.Dorchies hasn't replied to my mail yet. Could you provide some info as how to get in touch with some people from Hadassah medical centre?"
Apr 4
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Antonis and Taylan, Antonis: I cannot answer you answer but I think you may contact Prof. Olivier Dorchies from Switzerland who tried the Tamoxifen on DMD mice. Taylan: My son's CPK has decreased a bit (about 300 less) yes he…"
Apr 4
taylan çakır replied to Galia Ben Ishay's discussion Tamoxifen
"Dear Galia Ben Ishay, 3-year-old son was diagnosed with BMD.47-48 exons detected deletion.Doktor said that the BMD is light but I worry too much for my son .. I have read thrilledly about your writing on temoksifen and I will have questions, 1)…"
Mar 29
Celal Tüntaş favorited Galia Ben Ishay's discussion Tamoxifen
Mar 25

Profile Information

About me:
I'm the single mother of a 4 years old son with DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Adiel
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Nethanya

Comment Wall (2 comments)

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At 2:42am on June 23, 2011, Nimi Langer said…

Thanks

I'll look into it.

If you want you can give me a call.

 

0523259284

Nimi

Gesher Haziv

At 4:25pm on June 22, 2011, Moein said…

Hi,

Could you please let me know if Deflazacort is available in Israel?

Thank you very much

 
 
 

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