Galia Ben Ishay
  • Female
  • Israel
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Galia Ben Ishay's Friends

  • Shady
  • taylan çakır
  • Sai Chand. Gurujala
  • Abby Bronson
  • Nadja
  • adi hazan
  • Nimi Langer
  • Moein
  • Ofir Arad
  • David
  • Antonis Nikolits
  • JUAN PEDRO ARBULU
  • Marks33

Galia Ben Ishay's Groups

Galia Ben Ishay's Discussions

Pedal wheelchair

Started May 10 0 Replies

I stongly recommend this pedal wheelchair (see links below) to all those boys who start having difficulties walking:http://www.pedalwheelchair.com/…Continue

Tamoxifen

Started this discussion. Last reply by Sandro Jan 21. 47 Replies

Dear all,My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jerusalem.The drug considerably improved his condition: He can…Continue

 

Galia Ben Ishay's Page

Latest Activity

Galia Ben Ishay shared Jason Darienzo's discussion on Facebook
Aug 19
Galia Ben Ishay shared Jason Darienzo's discussion on Facebook
Aug 19
Galia Ben Ishay posted a discussion

Pedal wheelchair

I stongly recommend this pedal wheelchair (see links below) to all those boys who start having difficulties walking:http://www.pedalwheelchair.com/Customer%20Flyer%20%281%29%20-%20GOxCy%2030%20by%20Healthpedal%20-%202018%20-%20Jpeg%20copy.jpg…See More
May 10
Galia Ben Ishay favorited PPMD's blog post Capricor Announces New Pre-Clinical Study Finds Repeat Doses of CAP-1002 Lead to Enhanced Exercise Capacity in Duchenne Muscular Dystrophy Disease Model
May 2
Galia Ben Ishay replied to Jason Darienzo's discussion New CRISPR method efficiently corrects Duchenne muscular dystrophy defect in heart tissue
"Very interesting, thank you Jason for sharing."
Feb 7
Galia Ben Ishay shared PPMD's blog post on Facebook
Jan 25
Sandro replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia, I was wondering if your son is still using tamoxifen and if the situation is still stable or better. Is your son also using prednisolone or Deflazacort? And are there any side effects with tamoxifen? Can you also tell me when your son is…"
Jan 21
Galia Ben Ishay shared Ann Martin's blog post on Facebook
Jan 17
Galia Ben Ishay shared bob koch's discussion on Facebook
Jan 17
Sandro favorited Galia Ben Ishay's discussion Tamoxifen
Jan 15
Alex replied to Galia Ben Ishay's discussion Tamoxifen
"Hi!Is there any news about Tamoxifen ?"
Jan 15
Bruce Ward replied to Galia Ben Ishay's discussion Tamoxifen
"Galia, it is wonderful to hear that your son has stabilized! It is especially wonderful that he is retaining ability and I assume some ambulation (walking) without taking steroids. Thank you so much for sharing his progress. I understand that your…"
Sep 30, 2017
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Dear Alex and Sulthana, My son is stable, not better nor worse. I stopped giving him steroids (deflazacort) because there were only side effects, no benefits anymore.  All the best, Galia."
Sep 29, 2017
sulthana shaik replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Is your son taking deflazacort/prednisone along with Tamoxifen? What other medicines were prescribed? Please let us know."
Sep 28, 2017
Bruce Ward replied to Galia Ben Ishay's discussion Tamoxifen
"Taylan, Could you share the range of CK values your son has had? I have not been able to find a range of CK values for Becker.  Thank you"
Sep 28, 2017
Alex replied to Galia Ben Ishay's discussion Tamoxifen
"Dear Galia, how is your son?Are you still taking tamoxifen?Your post inspired me very much"
Sep 28, 2017

Profile Information

About me:
I'm the single mother of a 4 years old son with DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Adiel
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Nethanya

Comment Wall (4 comments)

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At 1:32am on July 24, 2017, Gloria Chen said…

Dear Galia Ben Ishay,  Thank you for your reply.  Can you please tell me how much weight your son is?  I would like to calculate how many mg of Tamoxifen my son need per day.  Thank you!  

At 6:20pm on June 9, 2017, Shady said…
Hi Galia ,any updates about tamoxifen with your child now?
At 2:42am on June 23, 2011, Nimi Langer said…

Thanks

I'll look into it.

If you want you can give me a call.

 

0523259284

Nimi

Gesher Haziv

At 4:25pm on June 22, 2011, Moein said…

Hi,

Could you please let me know if Deflazacort is available in Israel?

Thank you very much

 
 
 

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