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Galia Ben Ishay
  • Female
  • Israel
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Galia Ben Ishay's Friends

  • Shady
  • taylan çakır
  • Sai Chand. Gurujala
  • Abby Bronson
  • Nadja
  • adi hazan
  • Nimi Langer
  • Moein
  • Ofir Arad
  • David
  • Antonis Nikolits
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Galia Ben Ishay's Groups

Galia Ben Ishay's Discussions

Tamoxifen

Started this discussion. Last reply by Shady Jun 17. 33 Replies

Dear all,My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jerusalem.The drug considerably improved his condition: He can…Continue

Any news regarding the Tamoxifen trial???

Started this discussion. Last reply by Jay Griffin May 8, 2016. 1 Reply

Does someone (maybe PPMD) knows something about the advancement of the Tamoxifen trial? Research on mice date back to 2013, why clinical trials are SOOOOO long to start???(…Continue

 

Galia Ben Ishay's Page

Latest Activity

Shady replied to Galia Ben Ishay's discussion Tamoxifen
"Wishing your son and all of our sons a good health forever"
Jun 17
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Shady, After improving it seems that he has stabilized now. I hope it will be forever..."
Jun 15
Shady favorited Galia Ben Ishay's discussion Tamoxifen
Jun 9
Shady replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia any updates / improvement about tamoxifen with your child now?"
Jun 9
Shady left a comment for Galia Ben Ishay
"Hi Galia ,any updates about tamoxifen with your child now?"
Jun 9
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Yes Sai Chand, it is still in clinical trial for DMD."
Apr 28
Sai Chand. Gurujala replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Moein, Officially Tamoxifen has not become DMD medicine right. Still in clinical trials right?  Please share."
Apr 27
Moein replied to Galia Ben Ishay's discussion Tamoxifen
"It is already in the market for breast cncer"
Apr 26
Sai Chand. Gurujala replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia, I think still "Tamoxifen" is in clinical trials right. It does not come into market yet right?"
Apr 25
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Not really, only 300 less so far, but improvement is here and that's of course the most important."
Apr 25
Vivek replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia Thanks for your reply. I am really happy for you that uour son is showing improvements. Are CPK levels also coming down?"
Apr 20
Vivek favorited Galia Ben Ishay's discussion Tamoxifen
Apr 20
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Vivek, 20mg a day in the evening. Yes it is a prescription drug."
Apr 16
Vivek replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia In what dosage is he using tamoxifem... is it a prescription drug"
Apr 14
Vivek favorited Galia Ben Ishay's discussion Tamoxifen trial to start in November
Apr 12
Vivek favorited Galia Ben Ishay's discussion Tamoxifen
Apr 12

Profile Information

About me:
I'm the single mother of a 4 years old son with DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Adiel
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Nethanya

Comment Wall (3 comments)

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At 6:20pm on June 9, 2017, Shady said…
Hi Galia ,any updates about tamoxifen with your child now?
At 2:42am on June 23, 2011, Nimi Langer said…

Thanks

I'll look into it.

If you want you can give me a call.

 

0523259284

Nimi

Gesher Haziv

At 4:25pm on June 22, 2011, Moein said…

Hi,

Could you please let me know if Deflazacort is available in Israel?

Thank you very much

 
 
 

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