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Galia Ben Ishay Female Israel: Favorite

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Idebenone

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Galia Ben Ishay's Discussions

Pedal wheelchair

Started May 10, 2018 0 Replies 0 Favorites

I stongly recommend this pedal wheelchair (see links below) to all those boys who start having difficulties walking:http://www.pedalwheelchair.com/…Continue

Tamoxifen

Started this discussion. Last reply by Sandro Jan 21, 2018. 47 Replies 4 Favorites

Dear all,My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jerusalem.The drug considerably improved his condition: He can…Continue

Tamoxifen trial to start in November

Started Jul 26, 2016 0 Replies 2 Favorites

https://clinicaltrials.gov/ct2/show/NCT02835079?term=duchenne&recr=Open&rank=51Very…Continue

Tamoxifen trial to start in November

Started Jul 26, 2016 0 Replies 0 Favorites

https://clinicaltrials.gov/ct2/show/NCT02835079?term=duchenne&recr=Open&rank=51Very…Continue

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Galia Ben Ishay's Page

Profile Information

About me:: I'm the single mother of a 4 years old son with DMD.

Name(s) of child(ren)/individual(s) with Duchenne:: Adiel

Age(s) of child(ren)/individual(s) with Duchenne:: 4-6

City:: Nethanya

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At 1:32am on July 24, 2017, Gloria Chen said…: Dear Galia Ben Ishay, Thank you for your reply. Can you please tell me how much weight your son is? I would like to calculate how many mg of Tamoxifen my son need per day. Thank you!