PPMD Community

Galia Ben Ishay
  • Female
  • Israel
Share on Facebook
Share

Galia Ben Ishay's Friends

  • Shady
  • taylan çakır
  • Sai Chand. Gurujala
  • Abby Bronson
  • Nadja
  • adi hazan
  • Nimi Langer
  • Moein
  • Ofir Arad
  • David
  • Antonis Nikolits
  • Marks33

Galia Ben Ishay's Groups

Galia Ben Ishay's Discussions

Tamoxifen

Started this discussion. Last reply by Galia Ben Ishay Jul 23. 38 Replies

Dear all,My 9 years old son has been taking Tamoxifen for 2 months now. He is taken care of by a wonderful team in Hadassah Hospital, Jerusalem.The drug considerably improved his condition: He can…Continue

Any news regarding the Tamoxifen trial???

Started this discussion. Last reply by Jay Griffin May 8, 2016. 1 Reply

Does someone (maybe PPMD) knows something about the advancement of the Tamoxifen trial? Research on mice date back to 2013, why clinical trials are SOOOOO long to start???(…Continue

 

Galia Ben Ishay's Page

Latest Activity

Galia Ben Ishay favorited Jason Darienzo's discussion Gene transfer corrects severe muscle defects in mice with Duchenne muscular dystrophy
Jul 28
Gloria Chen left a comment for Galia Ben Ishay
"Dear Galia Ben Ishay,  Thank you for your reply.  Can you please tell me how much weight your son is?  I would like to calculate how many mg of Tamoxifen my son need per day.  Thank you!  "
Jul 24
ven favorited Galia Ben Ishay's discussion Tamoxifen
Jul 23
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Dear Gloria, I give him 20mg every evening. I don't know if you can get it without prescription. Good luck, Galia."
Jul 23
Gloria Chen replied to Galia Ben Ishay's discussion Tamoxifen
"Dear Galia Ben Ishay,   Can you please share to me the dosage of Tamoxifen to your son?  My son is now 49.4 kg, and he is 9.  I would like to know how many mg my son should take per day.  Thank you so much for your information.…"
Jul 23
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Yes, I've understood it's for ALL mutations."
Jul 23
Sai Chand. Gurujala replied to Galia Ben Ishay's discussion Tamoxifen
"So it is applicable for duplication exons as well right?"
Jul 21
Nita McGauran replied to Galia Ben Ishay's discussion Tamoxifen
"My 6 year old has the same exon deletions 8-9. Here's hoping Tamoxifen get's approved soon!"
Jul 11
Shady replied to Galia Ben Ishay's discussion Tamoxifen
"Wishing your son and all of our sons a good health forever"
Jun 17
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Shady, After improving it seems that he has stabilized now. I hope it will be forever..."
Jun 15
Shady favorited Galia Ben Ishay's discussion Tamoxifen
Jun 9
Shady replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Galia any updates / improvement about tamoxifen with your child now?"
Jun 9
Shady left a comment for Galia Ben Ishay
"Hi Galia ,any updates about tamoxifen with your child now?"
Jun 9
Galia Ben Ishay replied to Galia Ben Ishay's discussion Tamoxifen
"Yes Sai Chand, it is still in clinical trial for DMD."
Apr 28
Sai Chand. Gurujala replied to Galia Ben Ishay's discussion Tamoxifen
"Hi Moein, Officially Tamoxifen has not become DMD medicine right. Still in clinical trials right?  Please share."
Apr 27
Moein replied to Galia Ben Ishay's discussion Tamoxifen
"It is already in the market for breast cncer"
Apr 26

Profile Information

About me:
I'm the single mother of a 4 years old son with DMD.
Name(s) of child(ren)/individual(s) with Duchenne:
Adiel
Age(s) of child(ren)/individual(s) with Duchenne:
4-6
City:
Nethanya

Comment Wall (4 comments)

You need to be a member of PPMD Community to add comments!

Join PPMD Community

At 1:32am on July 24, 2017, Gloria Chen said…

Dear Galia Ben Ishay,  Thank you for your reply.  Can you please tell me how much weight your son is?  I would like to calculate how many mg of Tamoxifen my son need per day.  Thank you!  

At 6:20pm on June 9, 2017, Shady said…
Hi Galia ,any updates about tamoxifen with your child now?
At 2:42am on June 23, 2011, Nimi Langer said…

Thanks

I'll look into it.

If you want you can give me a call.

 

0523259284

Nimi

Gesher Haziv

At 4:25pm on June 22, 2011, Moein said…

Hi,

Could you please let me know if Deflazacort is available in Israel?

Thank you very much

 
 
 

© 2017   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service